OERU / OERF / UNESCO Press release: Towards an OER university - Free learning for all students worldwide

Please circulate: Joint OER Foundation / UNESCO press release.

The Open Education Resource (OER) Foundation is to host a strategic international meeting in Dunedin on 23 February, to commence planning for the provision of free learning to all students worldwide. Support from the United Nations Science and Education Organisation (UNESCO) to stream the meeting on the internet will allow the participation of education leaders and interested persons from around the globe.
Join the meeting as a virtual participant and help make OER futures happen.

Read more.


(If you blog about this important meeting -- please use the #OERU tag).

2011 will be a quantum shift year for the mainstream adoption of OER.

Cheers
Wayne
Wayne Mackintosh , Ph.D.
Director OER Foundation
Director, International Centre for Open Education,
Otago Polytechnic, New Zealand.
Founder and elected Community Council Member, Wikieducator
Skype: WGMNZ1
identi.ca

You received this message because you are subscribed to the Google Groups "OER university" group.
For more options, visit this group at
http://groups.google.com/group/oer-university?hl=en?hl=en
Visit the OER university page on http://wikieducator.org/OER_university

KT-EQUAL future events - Ageing Research and Design 4 Health Conf.

Dear colleague,

KT-EQUAL is planning lots of interesting events in the next few months focused on aspects of ageing research.

Below are a few upcoming events that may be of interest to you, more information can always be found on our website.

Upcoming workshops include topics such as -

• digital inclusion
• ethical dilemmas
• and creative societies.

A flyer is available with more information about these exciting free events.

The I'dgo consortium has also confirmed the full programme for their seminar on An international perspective on the Built Environment for an Ageing Population: Issues in maintaining access to outdoor places on the 16th February 2011.

Another upcoming conference which is still accepting papers* is the Design for Health Conference in Sheffield Hallam University on the 13th-15th July 2011
http://www.design4health.org.uk/

We look forward to seeing you at some of our events in the future.

Best Wishes

Helen Haigh
KT-EQUAL Co-ordinator
University of Sheffield

PJ adds: *Kirsty Christer at SHU contacted me re. D4H to advise that submissions are open until 7th Feb.

Shared Approach: 3 keys (and a certain conceptual framework)

Before we trip into 2011 let's make a quick return to 2008 and the three keys to the Shared Approach in mental health assessment [NIMHE, 2008] which are copied below.

In between each one I have highlighted how the Health Care Domains Model can contribute ...

1) active participation of the service user concerned in a shared understanding with service providers and where appropriate with their carers;

In the end (or at the beginning!) a model of care or assessment tool is only as good as the person using it.

To progress with key #1 there are in fact two locks to open. These are in the form of 'using' and 'user'. H2CM incorporates the individual from the outset. The model encourages consideration of the client's beliefs, preferences, and experiences ... Can the client and carer actually use the model themselves to help understand their needs, their care plan and interventions? Is there a homework exercise there for them?

Do they have capacity to decide? Do they need support - an advocate? How do we ensure the carer is factored into the care equation? Well, in h2cm that's through the social domain.

2) input from different provider perspectives within a multidisciplinary approach, and;

Do you know what "different provider perspectives within a multidisciplinary approach" look like?

Well just envisage that for a few moments. ...

A scary exercise, eh?

In order to take those different perspectives and integrate them a common framework is surely needed?

Artists are lucky they use perspective as an integrative lever on paper, canvas, or whatever medium.

Clients, carers, health and social care professionals need a canvas of their own, BUT one that is sufficiently generic and agnostic to be 'owned' by all. 

3) a person-centred focus that builds on the strengths, resiliencies and aspirations of the individual service user as well as identifying his or her needs and challenges. NIMHE (2008)

H2CM can support and foster person-centred care. The model is situated: there is one (changing) situation with the person at the center. Whatever the context -

strengths, resilience, stresses, vulnerabilities, aspirations, needs, challenges

- the care domains model is fit for purpose. Health and social care is dynamic, in person-centred care that focus needs to change accordingly. Our assessments and evaluations need to resolve the SCIENTIFIC, SOCIOLOGICAL, POLITICAL, INTERPERSONAL and SPIRITUAL dimensions of care while assuring the BIG picture.

Reference:
The National Institute for Mental Health in England (NIMHE) and the Care Services Improvement Partnership. 3 Keys to a shared approach in mental health assessment. London: Department of Health; 2008.
Available from: http://www.3keys.org.uk/downloads/3keys.pdf

Before you measure ....

Fitness-to-work tests to be reformed after criticism

- you check your tools:

You calibrate, validate and balance ...

strengths - weaknesses

functional - diagnostic

humanistic - mechanistic
individual - group
purpose - policy
practice - process

physical - emotional

person centred - policy centered
sad (?) - (you will be -) happy

Additional links:
How to assess happiness? A tale of three measures
WWF: Manifesto - The Politics of Happiness
Frank Furedi: Why the ‘politics of happiness’ makes me mad

Report: Open data, democracy and public sector reform

From: Tim Davies tim@practicalparticipation.co.uk
Date: Wed, Sep 8, 2010 at 2:35 AM

Open data, democracy and public sector reform is a report based on a recent MSc dissertation taking a look at the policy and practice of using open government data from data.gov.uk. It's now up as an online document at -
http://practicalparticipation.co.uk/odi/report/

In looking at how open government data is being used in practice it draws out a number of themes, including:

Data is not just for developers
- there is a tendency to focus on machine-readable data for large scale visualisations and mash-ups; but data can be useful to individual citizens or local citizen activists, finding facts within spreadsheets and campaigning for change locally.

Open government data changes the gatekeepers, and the role of civic actors
- now mainstream media, independent citizens, companies and different levels of government are all afforded the possibility of advancing their own interpretations of data. Government, however, retains some (significant?) gate-keeping power by setting the categories and structure in which data is recorded and released. Debates over the meaning of data become more important - and the capacity of local democratic actors to be part of those debates again needs to be developed.

Open government data can support innovation in public services
- predominantly through improving the 'markets' for public service innovation - allowing social and commercial entrepreneurs to work with government data, and preventing exclusive access to data being an anti-competitive advantage for certain firms. However, the research didn't find cases where open government data was successfully facilitating 'citizen led' forms of public service innovation involving local communities discussing and debating how services operated.

A focus on digitizing government underlies much open government data supply and use, and can lead to concerns of politics, power and justice being under-valued in the development of open government data infrastructure
- and we need more articulation and focus on real-live civic use-cases of open government data to inform the development of open data infrastructures.

All comments and feedback on the report welcome - particularly to help shape thinking about what to do with the research next.

http://www.timdavies.org.uk
@timdavies

Co-director of Practical Participation:
http://www.practicalparticipation.co.uk

My source:
ciresearchers at vancouvercommunity.net

Cost savings: 4-fold literacy = care literacy

The RCN's campaign I posted yesterday highlights the belief in and potential of nurses to 'think out of the box'.

There are many people, in many walks of life who are currently racking their brains and flipcharts to come up with ideas for cutting costs. In addition to the RCN, the government has its on-line campaign with the 'Spending Challenge'.

As for nurses there is an extra rabbit to pull from the hat: improving patient care.

Media discussion about the cloned beef - food supply story this week brought a point regarding the relative scientific literacy of the general population of USA and UK. This prompted me to consider discipline based literacy, what usually passes for 'basic grounding in ...' or competency. ('Literacy' has already been corrupted, now for another kick.)

For nurses with their subject disciplines, which can be represented in the health career model - what current public sector health (and social) care requires (demands!) is care literacy.

It is the ability of nurses (and other professionals) to be aware of what happens in the two adjoining boxes, or that one remote enclosure that can simultaneously engender and deliver:

• new insights - creativity and innovation;
  
• holistic integrated care;
• care literacy;
• and - cost savings that can still improve patient care.

See also:
http://hodges-model.blogspot.com/search/label/literacy

Holistic bandwidth (and the dangers) of political care

The attack on MP Stephen Timms here in the UK highlights not only the ongoing importance of personal safety for public service personnel, but how much politicians value their constituency work. It is no accident that these sessions are called "surgeries".

The politician meets not just a citizen, but a political obligation and duty to care. In the media reports it was interesting to hear of how much satisfaction MPs get from their constituency work. Listening to the reporting and debate prompted me to realise that although politicians vary in how well they engage and empathise with their constituents the problems they are asked to deal with covers a broad holistic spectrum. Consider this listing written by Tony Wright MP:

• The education system
• The transport system
• The social services
• Health services
• Housing
• The environment
• Government bodies
• The justice system
• Immigration and asylum
• Finances and employment
• Trade unions
• The media

I am a community nurse five days a week.

Our MPs are community politicians one day a week with 'Constituency Friday'.

So to The Rt Hon. Stephen Timms (and his staff) I wish you a speedy recovery and congratulations on the extent of you and your peer's constituency work.

Holistic in a word and deed.

Congratulations also to the Green Party on the success of their leader Caroline Lucas MP.

The Health Career Model: POLITICAL domain resources

International Journal of User Driven Healthcare (IJUDH) CfP

Dear Mr. Jones

In view of your work in patient-centered care, I’d like to invite you and/or your colleagues to submit a paper to this Special Issue of the new journal described further below and via the web link provided. I think our global readers would be very interested in your thoughts (and projects) on innovative ways to get relevant healthcare information into the hands of ‘users’ (both patients and providers), within the user-driven EBM paradigm, per below.

Please also share this call for papers with your colleagues.

Thanks for your consideration,

Susan Ross, MD

International Journal of User Driven Healthcare (IJUDH) Call for Papers

Editor-in-Chief:
Rakesh Biswas,
Center for Scientific Research and Development (CSRD),
PCMS Campus, India

Published: Quarterly

Call for Papers - Special Issue:

Submission Due Date: July 1, 2010
Special Issue On User Driven Healthcare and Evidence-based Medicine

Guest Editors:
Susan Ross, MD, FRCPC

Introduction

User Driven Healthcare (UDH) is part consumer-driven healthcare, part narrative medicine, and part Health 2.0. It stems from a concept of participatory healthcare whereby all stakeholders, enabled by information, software, and cyber-community, focus on healthcare value. But where does Evidence-based Medicine (EBM) fit into this framework? It is sometimes forgotten that EBM is a three-legged stool, comprised of the triad of evidence +provider expertise + patient preferences. In this EBM framework, provider expertise is needed to bridge the inferential gap between population-based evidence and the individual patient. And each patient's values and preferences should narrow that inferential gap further. But since the introduction of EBM nearly two decades ago, the primary focus of EBM proponents has been on Evidence, at the expense of patient preferences and provider expertise. Perhaps this is why the promise of EBM to foster the most efficient and high quality healthcare has not yet been realized.

Objective of the Special Issue

This Special Issue will focus on the following questions: Is the recent emergence of User Driven Healthcare really a new, post-EBM paradigm for healthcare, or just an overdue consideration of the other two legs of the original EBM stool? How might this trend affect all stakeholders?

Recommended Topics

Topics to be discussed in this special issue include (but are not limited to) the following:

• Developing valid patient-level evidence using the Web
• Evidence generation—clinical research strategies using social media and mobile technologies
• Examples of UDH to a) help formulate the right questions to ask in EBM; b) develop answers to those questions; c) disseminate the answers to patients and providers with a need to know; and d) test the impact of UDH-generated Evidence on patient outcomes
• Helping online patients sift the ‘wheat’ from the ‘chaff’—information management for patients in an EBM world
• How to incorporate patient preferences and values into ambulatory care decision-making (i.e., into the 10 minute visit)
• Measuring the impact of UDH on patient outcomes
• Patient-level decisions vs. population-level evidence (bridging the inferential gap)
• Pharmaceutical communication strategies using social media—impact on healthcare quality and costs in an EBM framework
• Place of social media in EBM—patient and physician online communities
• Practice of UDH vs. EBM around the world
• Regulatory issues of evidence dissemination by industry using social media in healthcare Statistical and other evaluative methods to assess the validity and reliability of evidence developed using social media and mobile technologies
• Trends in N-of-1 studies, and their relevance to EBM and UDH
• Use of collective intelligence to solve healthcare problems for individuals and communities

Submission

Researchers and practitioners are invited to submit papers for this special theme issue on User Driven Healthcare and Evidence-based Medicine on or before July 1, 2010. Submissions received after this date will be reviewed for possible publication in subsequent issues of the journal. All submissions must be original and may not be under review by another publication. INTERESTED AUTHORS SHOULD CONSULT THE JOURNAL’S GUIDELINES FOR MANUSCRIPT SUBMISSIONS at http://www.igi-global.com/development/author_info/guide.asp. All submitted papers will be reviewed on a double-blind, peer review basis. Papers must follow APA style for reference citations.

All submissions and inquiries should be directed to the attention of:

Susan Ross, MD
Guest Editor
Email:sdross720@gmail.com

Comment: session at Beyond These Walls - Public Engagement Colloquium

I am of course really pleased that Prof. George Kernohan employed h2cm in his presentation last month - Beyond These Walls - Public Engagement Colloquium which I posted on W2tQ.

Considering his abstract I have added some observations below that I hope will further highlight the model's potential utility in this and other areas.

To begin George is quite right to describe the model as -

'a relatively simple way to think about and summarise the variety of engagement types.'

This explains the model's use as a student resource, a foundational framework on which to superimpose their learning and map placement and professional development experiences. As a learning activity reflection is greatly concerned with the student's accounts of engagement with patients, colleagues, carers and the public at large. This also flags up the belief that the model has some generic educational purposes in health and beyond with patients, carers and the public.

The model should not however be restricted to simple representations and applications. Granted the safety, efficacy and value of the model remain to be proven, but hopefully the directions indicated here on W2tQ and in publications to date are worthy of further exploration? More complex - lifelong learning - uses of the model might include:

• case formulation
• psychological therapy formulation (CBT, family)
• self-directed care planning and budgeting (sign-posting)
• complex systems in health care
• policy and politics in health care
• reflection: students, client life story work
  
• integrating care recording
• and clearly public engagment in many contexts; research, management and service development.
  

I am adding my (italicised) comments to Prof. Kernohan's original abstract below:

The first quadrant [SCIENCES] deals with scientific response to individual signs and symptoms: where engagement aims to ensure that people comply with the healthcare intervention: engagement is about informing the patient and their informal carer about their physical needs and responses.

People comply when they understand treatments and this understanding needs to be demonstrated. There has been much emphasis on concordance, but this has to be earned as Prof. K. indicates.

The second quadrant [POLITICAL] deals with mechanistic and group activity: for example political interventions to agree rules, policy and systems. Engagement here refers to members of groups working under a specific governance system or approach– activists and unions lobby for change, in this care domain. Arrangements for protection of vulnerable people are set through engagement here. Ethical issues guide the group mechanistic activities.

The past couple of years has seen a whole new group of people acting in this domain. The Mental Capacity Act has resulted in various protections for individuals who are assessed as lacking mental capacity. Whilst this is quite specialist and the province of secondary care and social services, the public will increasingly be exposed to vulnerable adults in their community, on their street. (I saw a gent walk past last night - to be collected by a care worker and taken back to the near-by care home. There was some resistance as they reached the corner. Deprivation of liberty and best interest sprang to mind. ...)

There are numerous other examples: membership of the public in Foundation Trusts, consultation processes on service locations, the provision of information resources for the public.

Another critical policy factor here is QUALITY, how this is measured and the public engaged in those measures and their EVALUATION.

A hybrid approach WILL be needed. A single measure is insufficient and within h2cm inevitably skewed.

Thirdly [SOCIOLOGY], there are more humanistic aspects of care: speech, thought, narrative and free text: stories contribute to group actions. Here we have the social and cultural components to remind us that engagement must work in a social context.

I tend to ground speech and thought in the interpersonal domain (related to cognition) as the primary focus of nursing (health and social care) is the individual. Although communication (society) is impossible without thought and speech and there is a special link here in that the individual cannot acquire appropriate thought and speech without being socialised.

Stories have a definite home in this care domain. Stories are the foundation of what people share, who we are, heritage. Stories differentiate familiars and strangers - stories old and new. Narrative medicine is here, right now. Significantly, the rise of science is in diagonal opposition to the domain of stories.

The final domain [INTER-intraPERSONAL] emphasizes the role of the individual in needing tailor-made care, requiring dignity and respect. Here lies a more holistic type of care and is more ‘mind’ than ‘body’ where interpersonal aspects of engagement are more person-centred.

This domain and the proximity of the 'individual' axis is the focus of nursing care. The rationale for individualised, personalised, person-centred, client-centred care is found here. We need to cross the individual axis repeatedly in order to achieve holistic care. There is no single destination. This journey is never a 'single' in two senses: neither one-way, nor travelled alone hence George's objective in public engagement.

Across all four care domains, public engagement is a key sustaining action to make the model meaningful but also to provide some reassurance that engagement although complex and varied, can be managed in a logical way to enhance care.

I can see what George means by stating that engagement can be managed in a logical way.

Logic's extent varies across the care domains of Hodges' model; from the logical affirmation and assurance that underpins evidence based interventions to the decision algorithms that inform NHS Direct. There is also a need for recourse to several forms of logic as the model is traversed and negotiated. Folk theory, dreams, the chaos of elections and economic uncertainty, and the public's sense of demographic trends also have their place.

I understand that Prof. Kernohan's slides will be posted on the event website in due course.

Many thanks to Professor Kernohan for his recognition and publicizing of the health career model.

Image source:
Gogeometry.com - http://www.gogeometry.com/problem/p076_square_circle_area.htm

Hodges' model: subject of a session at Beyond These Walls - Public Engagement Colloquium

Hodges' model found a place in a session at:

Beyond These Walls - Public Engagement Colloquium
Faculty of Life and Health Sciences
22nd April 2010 at the Ross Park Hotel, Kells

Theoretical review of public engagement in Nursing: Abstract

by George Kernohan, Professor of Health Research Nursing, University of Ulster

Nursing & health professional have wide roles in care of people in need, in sickness and in health and in supporting their informal carers. These roles, by necessity involve people in various ways: in this paper Hodges Health Career Model (Jones, 2009) is used to provide a framework to underpin public engagement in nursing. The model provides a relatively simple way to think about and summarise the variety of engagement types. It comprises two lines and eight words which appear to provide a graph with two axes. The vertical axis involves the recipients of care: individuals and groups, the other involves the care provider and what they do: from mechanistic to humanistic.

The first quadrant [SCIENCES] deals with scientific response to individual signs and symptoms: where engagement aims to ensure that people comply with the healthcare intervention: engagement is about informing the patient and their informal carer about their physical needs and responses.

The second quadrant [POLITICAL] deals with mechanistic and group activity: for example political interventions to agree rules, policy and systems. Engagement here refers to members of groups working under a specific governance system or approach– activists and unions lobby for change, in this care domain. Arrangements for protection of vulnerable people are set through engagement here. Ethical issues guide the group mechanistic activities.

Thirdly [SOCIOLOGY], there are more humanistic aspects of care: speech, thought, narrative and free text: stories contribute to group actions. Here we have the social and cultural components to remind us that engagement must work in a social context.

The final domain [INTER-intraPERSONAL] emphasises the role of the individual in needing tailor-made care, requiring dignity and respect. Here lies a more holistic type of care and is more ‘mind’ than ‘body’ where interpersonal aspects of engagement are more person-centred.

Across all four care domains, public engagement is a key sustaining action to make the model meaningful but also to provide some reassurance that engagement although complex and varied, can be managed in a logical way to enhance care.

Jones, P. Hodges Health Career - Care Domains – Model. 2009.
http://www.p-jones.demon.co.uk/ accessed 25/03/2010

Chambers, R. Involving Patients and the Public. How to do it better. 2000. Radcliffe, Oxon

Related links:

Kernohan, G. Theoretical review of public engagement in Nursing. Proc 1^st Public Engagement Colloquium, Kells, Co Antrim, 22 April.
http://www.ulster.ac.uk/scienceinsociety/beyondthesewalls.pdf

Science in Society

Design an interactive space - 2 meters square - for Expolab project

My source: DESRIST discussion LinkedIn

Hello DESRIST members.

This is about an interactive design project, and the folks at Citilab are very interested in design research. Check it out if you're interested.

Letting you know that Citilab Cornella has an open call for exhibits that explore digital technology for their new project "Expolab". This experiment challenges designers to design 1 or more Expolab cubes with interactives that explore how new digital media and tech affects how we share memories, connect, travel through time and space, work, and experience safety. An opportunity to experiment, and work with the brilliant Expolab team Irene Lapuente, Ramon Sangüesa, and Astrid Lubsen of Citilab.

Start with the cubed 2mx2m space, then modify the space/walls as needed to make it experimental and interactive. Spaces will be equipped with electric and internet connections if needed. Citilab will build 6 of these and put them on display in Barcelona. Expolab cubes can have any number of walls, you can design the whole thing as long as it fits in 2mx2m. The Tech Virtual hosts free 3D prototyping space in Second Life for you to build or document your entry ( http://slurl.com/secondlife/The%20Tech%202/160/211/33 ). If you'd prefer to use your own tools that's fine too, just upload your screenshots after creating a project at:

http://thetechvirtual.org/projects/expolab

Full design brief at http://thetechvirtual.org/projects/expolab/expolab-brief-3.pdf

Looking forward to some new input on this experimental venture! Expolab team comes online for live design reviews Thursdays at 13:00 EST / 10:00 PST / and 18:00 CET (Barcelona). Did I miss anything? Send a note to rketner[at]thetech.org

About Expolab: http://expolab.net/eng/?page_id=5
"Expolab is a new way to understand exhibitions. It is a laboratory devoted to researching and creating new exhibitions in the area of technology, innovation, science and design, which are the main focus of work at Citilab. Expolab raises the possibility of creating exhibitions with strong citizen participation and contribution from the very beginning of an exhibition, and not just using the audience as providers of feedback once the exhibitions is one. This represents a new challenge within the world of museums and exhibitions.

Additional links:

5th DESRIST Conference Design Science Research http://desrist2010.iwi.unisg.ch/

Sciences knowledge domain: Virtual Reality, Visualization resources
(suggestions, reports of broken links appreciated):
http://www.p-jones.demon.co.uk/linksTwo.htm

Nursing & Midwifery Council consultation on standards for pre-registration nursing education

This NMC consultation seeks your views on new standards for pre-registration nursing education programmes. These standards set out what nursing students must demonstrate to be fit for practice at the point of registration.

They will be used by Approved Education Institutions (AEIs) and their partners within the UK to design and develop education programmes.

The new standards

The proposed standards have been developed following a review of the existing Standards of proficiency for pre-registration nursing education (NMC 2004) [PDF]. They set out the requirements that all pre-registration nursing education programmes must meet.

They also set out guidance, which should be followed by AEIs and their partners. Finally, they offer advice, providing extra information and context to those who design and develop nurse education programmes.

There are two parts to the standards:

• Standards for competence the knowledge, skills and attitudes that all graduate nurses need to demonstrate at the point of registration with NMC. Generic competencies need to be met by all nurses. Field competencies relate to the four fields of adult, mental health, learning disabilities and children’s nursing.

• Standards for education the requirements all pre-registration nursing programmes have to meet, including those relating to the teaching, learning and assessment of nursing students. The standards for education have been developed to ensure students’ competence can be rigorously assessed and demonstrated. The standards must be robust enough to meet public expectations for safe and effective practice.

The standards for pre-registration nursing education will be published in the autumn of 2010. They will replace the existing Standards of proficiency for pre-registration nursing education. New education programmes, designed to meet the new standards, will be introduced from September 2011.

The consultation

This consultation gives us the opportunity to receive your feedback on the proposed new standards. We want to know:

• how effective you think they will be in enabling programme providers to develop nursing education programmes
• how they can be enhanced or improved
• whether you can see any barriers to their successful introduction
• whether they are clear and easy to use
• whether we should include anything else and
• whether they support and promote equality and diversity.

Some of the requirements and guidance in the proposed standards for pre-registration have been carried over from the current Standards of proficiency for pre-registration nursing education (NMC 2004). [PDF]

Most of the questions in this consultation will ask you about information that is new, or where there have been major changes to the existing requirements.

Get involved
Our online survey will run from 29 January to 5pm on 23 April 2010.
Link to survey page.

Attend a question and answer event

During February and March we will host five question and answer events across the UK.

If you are considering taking part in the consultation, this is an opportunity for you to ask NMC professional advisors who have been leading this review any questions you have about particular aspects of the consultation document or the new standards.

The events are designed to support you in completing the online survey - their purpose is not to receive feedback on the new standards.
To find out more go here.

My source NMC mail list:
Leila Harris-Ryberg
Communications Officer
Press and Public Relations
Communications and Stakeholder Relations
Nursing & Midwifery Council
23 Portland Place
London W1B 1PZ
www.nmc-uk.org

Goodbye to David McKendrick an 'old' friend and personal reflections

The past three years have been quite challenging both personally and professionally.

Professionally as an IT secondment came to an end in 2007 and brought with it positive and negative changes. The positive of moving back to clinical practice, the negative the vagaries of clinical banding and the Knowledge and Skills Framework which many health sector organisations are still attempting to fully implement. On a personal level, I am now also divorced. Working on the community for so many years - just over the border of my clinical patch - was a gift of convenience in terms of the children's schooling and playing taxi driver.

While there was a very objective interview panel I feel I owe having my current job to my friend David McKendrick. This fact now scares me witless that this was back in 1985 when my eldest son was born. I was so wrapped up in this life-changing event that the secretary phoned to ask if I did want the job. The organisation I still work for has changed its title and status umpteenth times it seems and I have had several roles over the years, including research and service development projects. The truth is though that when it comes to work, this journey began at Chorley with David and that is essentially where I am still at.

I was really shocked then when Sue, David's wife phoned with the news that David had died earlier this month. I'd kept in touch with David through the years. Due to my new domestic circumstances I moved back to Ashton-in-Makerfield - living not far from David and Sue - in July last year. David was so helpful, patient and supportive as I have progressed through the divorce.

We both worked at Winwick Hospital, Warrington, UK and I am pleased I went along this summer to a reunion and saw David in his element with friends, Sue and a pint. I also managed to take quite a few photos which will now be extra memorable for so many of us. Although I didn't work with David at Winwick, as already suggested he was my boss on the community mental health team at Chorley, Lancashire from October 1985 through to his early retirement due to illness.

We shared a love of IT and coding as enthusiasts. In the early 80s David called to my parents home when I'd bought a BBC micro, an upgrade from a Sinclair ZX81. David contributed so much to health IT, through his work with Open Software Library, computer aided learning and his pioneering bulletin board. David was also a co-organiser of a computer based training conference at Keele University 1987-88. Open Software Library distributed several computer programs I wrote on the BBC micro. One thing that makes me smile is the way in the late 80s early 90s I got my underpants into a bit of a twist over the copyright. Now reflecting back, David was a real Gent in how he handled that, my concerns to which he listened, accepted and explained. There was a lesson there also in terms of Hodges' model and Brian Hodges' worries over the same. Where might the model be now, we often pondered, if it had been driven hard from the outset!

When David retired it wasn't the same. Of course you know the job changes constantly, but there was a real loss of impetus: from warp to impulse drive. David was much liked and respected as a boss and colleague. If you were professional in your approach put the clients, carers and families first then he left you to get on with the job. That said his recognition for accountability and governance was communicated and shared by the team. He used an Amstrad micro to produce statistics on the number of home visits, injections and many other details. David was ahead of the informatics game in recognising the value of information for service planning, development and improvement. When David was off a while I kept this effort going for a short while until duties dragged me elsewhere. David's early IT work was published in the Community Psychiatric Nursing Association journal, an association (now the MHNA) which he helped established initially.

I can see us all walking from the team office at Eaves Lane hospital (long gone now), up through the tunnel to the main hospital for the regular team meeting. That was a golden age of sorts, when all the community nurses came together. David was always keen on that. You were a member of a team and everyone was valued and had a role to play.

David recognised my interest (and yes skill -- thanks David!) in computing and sent me on a health care computing conference held in Manchester 1986. I wrote a report and have attended and presented at the HC-XXXX series on several occasions since. We often shared books, papers and plans around technology developments and when to build or buy that next PC.

I really, really can't believe David has gone. He was (very) widely read and we loved knocking ideas around always wondering about what sort of clinical / nursing application might have a future. I only learned since his passing of his excellence as a student nurse. When he qualified as a Registered Mental Nurse (RMN) he was awarded the Gold Medal. He was always keen to read my writing efforts and discuss the same. I remain really impressed with his website on Winwick Hospital - Winwick Remembered. While there is much in the old institutions to say good riddance to and never again this IS social history and as BBC R4's In the Mind featured there is much to record and document. In 2006 David got in touch with a query regarding relatives of patients from Winwick trying to trace details of their family members. I posted his inquiry on the psychiatric nursing list.

Over the past year or so, we met a few times at Tom & Gerry's the local pub with David riding there on his bike: magic!! Sitting at that usual table (near the plug) sad, but lots of smiles too.

I arrived late to politics and I much admire his involvement in community work, the Three Sisters Recreation area project in Ashton. While I enthused over 'community informatics' David was practicing it, engaging with others. I'm sure I don't appreciate the extent of his efforts, the youth club - helping make IT available to youngsters, environmental projects, and the community forum.

I am truly thankful for having met David, for his friendship, support and guidance over the past 18 months and the years before. If I've three regrets:

1. I never did take my guitar around; as I realise now how good David was - McKendrick's Moonshiners no less - I clearly missed a lick there!
2. Also never did find and show David the old photos from Winwick hospital - the show we put on as students.
3. Being able to explore Ashton Heath, the types of heather and the bees there.

Regular readers here know of the hyperbole over the new website, well now if I ever do create the new website - maybe we'll know why...

David - I'll miss you pal and miss you already!
As the new decade begins bless you, Sue and your family and friends...

Peter

===================================
From: Richard Lakeman, richard.lakeman at dcu.ie
To: Peter Jones h2cmng at yahoo.co.uk
Sent: Mon, 14 December, 2009 14:40:27
RE: [PSYCHIATRIC-NURSING] David McKendrick - CPN - CPN Manager, Winwick & Chorley, UK

I’m sorry to hear about David, Peter. Thanks for letting us know. I never met David, but he marketed some software I wrote for some years and He was a pleasure to deal with.

Regards
Richard

Call for papers: IFLA Health and Biosciences Libraries Section open session

Colleagues from around the world are invited to submit an abstract for consideration for the HBS Open Session:

Health and Biosciences Libraries Section


Aim and Scope of the Session

It is hoped that papers will cover a wide range of areas - for example:

• Partnerships and collaborations that support free access to health information.
• Health libraries/health information professionals role in promoting open and / or equitable access.
• How health information is disseminated to the general public?
• How useful is free health information? Is it evidence based?
• How evidence based information is incorporated into freely available health information?
• Is there a decline in the use of health information that is not freely available e.g. library subscriptions?
• How do consumers prefer to access health information e.g. mobile devices, magazines, newspapers?
• What role health information literacy may have in health information?

It is anticipated that presentations be 15 minutes with time for questions at the end of the session.

Important dates:

February 1st 2010: Deadline for submission of abstract
March 1st 2010: Notification of acceptance/rejection
May 1st 2010: Deadline for submission of text

Submission Guidelines:

The proposals must be submitted in an electronic format and must contain:

Title of paper
Summary of paper (250 - 350 words maximum)
Speaker's name, address, telephone and fax numbers, professional affiliation, email address and biographical note (40 words)

Submissions are to be submitted before February 1st 2010 by email to:

Paivi Pekkarinen
National Library of Health Sciences
Haartmaninkatu 4
FI-00290 Helsinki, Finland
paivi.pekkarinen@helsinki.fi
www: http://www.terkko.helsinki.fi

Regrettably IFLA's Sections do not have funds available to pay for speakers expenses, including registration for the conference, travel, accommodation.

http://www.ifla.org/en/calls-for-papers/1930

Paivi Pekkarinen
IFLA Health and Biosciences Libraries Section / Secretary
National Library of Health Sciences
Haartmaninkatu 4
FI-00290 Helsinki
email: paivi.pekkarinen at helsinki.fi

HIFA2015 profile: Paivi Pekkarinen is Head of the WHO Information Service Centre, National Library of Health Sciences, Finland. Professional interests include:

• To enhance equal access to health information, in particular in the WHO European Region;
• To enhance collaboration and networking of the Public Health Special Interest Group of EAHIL http://www.eahil.net/PHISIG-page.html;
• and knowledge management issues.

Click here to read online.

HIFA2015: Healthcare Information For All by 2015 www.hifa2015.org
With thanks to our 2009 Sponsors: *British Medical Association, ePORTUGUESe, Network for Information and Digital Access, Royal College of Midwives, Royal College of Nursing*

To join or unsubscribe from HIFA2015, email:
hifa2015-admin at dgroups.org
To join our sister group CHILD2015 (child health), go to:
www.hifa2015.org/child2015-forum
To join our sister group HIFA2015-Portuguese, go to:
www.hifa2015.org/hifa-pt

My source:

HIPNet Listserv hjohnson at jhuccp.org

KT-EQUAL workshop: Who is the (research) User?

Dear Colleagues

Just a reminder that the next KT-EQUAL workshop will be on the subject of Who is the User?

This will be held on 26th January at Loughborough University. As with all KT-EQUAL events there is no charge for attendance.

The workshop will be of interest to a wide range of professionals and policy makers, health and social care practitioners, employers, charitable and government bodies concerned with the needs of older and disabled people, all those involved in the provision of services and, of course, researchers and academics from engineering, biological, social science, medical and health care disciplines. Older people, who have the biggest stake in ageing research, are especially welcome.

To register please go to www.sparc.ac.uk and follow the links.

Specific enquiries should be made to:

Heather Williams
Project Officer (KT-EQUAL)
School for Health, University of Bath
Email: H.Williams@bath.ac.uk
Kind regards
Peter Lansley

^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^
Professor Peter Lansley, BSc, MSc, PhD, MCIOB, FCOT
Director, KT-EQUAL – Knowledge Transfer for Extending Quality Life
School of Construction Management and Engineering, URS Building,
University of Reading, Whiteknights, PO Box 219, Reading, RG6 6AW, UK
tel: +44 (0) 118 378 8202 fax: +44 (0) 118 931 3856
^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

Point of care? The King's Fund - patient experience

The real 'point of care' is that there are several points with many perspectives:


Patient (person) - Care professional - Manager - Carer
Public (citizen) - Student - Lecturer - Service User Groups
Physical - Emotional - Political - Social
Patient - Inspectors - CEO information governance - Commissioners

Don't drown seeking gaps in processes. All of the P's count!

The King's Fund
The Point of Care: Improving Patients' Experience.

Hodges' model social care domain - patient, carer resources.

Image source:
Multiple Faces: Insight Management Group

Blog Action Day: Imagine a generation taking nothing for granted from the start

Blog Action Day 2009:

"Climate change" - these words spoken in so many different languages may be the first uttered by the World's infants over the next decade. It really could happen! If these words are the constant they need to be, on the lips of all parents, teachers, leaders and all who 'know'.

That would be no bad thing for the (near) future.

Just imagine:
a generation taking nothing for granted from the start.

People respond best to change they see. In particular change in their environment. We are hard-wired to react to change that represents a threat. We respond with flight or fight. On island Earth, this rock we share, the options are becoming ever more limited, limite, limit, limi. ...

In order to respond now, we must rely on several forms of vision. We must take into account not just ourselves, but as is often highlighted:

• future generations, our legacy - their inheritance (SOCIOLOGY)
• other individuals - our brothers and sisters - and their situation (INTERPERSONAL)
• the evidence for climate change and solutions (SCIENCES)
• those in power and their translation of the agenda for positive change (POLITICAL)
• the effect of climate change on flora and flora (SCIENCE, SOCIOLOGY and POLITICAL)
• the physical health impact (SCIENCES)
• the emotional and mental health impact (INTERPERSONAL)
• the changes needed in policy and political change succession (POLITICAL)
• the ethical values that are shared and debated - consumerism (business at any price $1, £1, €1 .... stores), Deep Ecology (INTERPERSONAL & POLITICAL).

Things, especially human 'things' are never that straight forward. The impact of climate change is writ large in that last word - change. Perhaps in erecting the faces the lesson of Easter Island is environmental dominoes. For us of course this means that as the climate changes so does the environment. For some the change is quickly evident if you live by the ocean, tundra or mountainous glaciated regions.

Change happens on local, regional, national and international levels.

From the Earth observing satellites above, to survey vessels on the oceans, and the research stations in the Antarctic and Arctic vision is everything in hearts and minds paving the way for action in classrooms, homes and eco-prise. ...

Additional links:
How psychology can help the planet stay cool, New Scientist

Maldives government takes a dive for climate change, NatGeo

Hodges' model SCIENCES links 'Environment, Sustainability, Ecology & Eco-system Health'

Image source: Easter Island photo -
http://www.fractalenlightenment.com/2007/08/easter-island-and-us.html

Distorted care

Some musical performances are so polished, clear and (p)honed that we readily attribute them to the classical genre. There are experimental pieces that 'buck this quality trend' but the musicianship, melody and composition stand the test of time grabbing audiences by the ear, throat and heart. On the popular music front some bands - The Eagles spring to mind - are not universally appreciated for their sound, (sales), shine and harmonies.

Whatever the music though if you ramp up the volume enough - distortion happens. This disturbs and disrupts the artist's, composer's and producer's original intent.

The worry is that care can be similarly distorted, not only by those who can shout the loudest creating noise, but the political clamour that creates its own form of cultural background radiation. It becomes hard for everyone to listen and reflect on the track we've heard so many times since our teen years:
you know the one - 'Quality Care' by 'Informed Debate, Health & Social Lookyafters'.

Image my source: Sodahead.com

Additional link - BBC: Compulsory social care bill plan

Relationships matter: Society Guardian & The WSJ

Re. Charles Leadbeater's State of Loneliness, The Guardian, Society, 01.07.09

The cover of this weeks Society Guardian immediately caught my eye with its picture (I wonder which corner of which care domain this lady is sat in?):

The text initially passed me by; then yesterday I caught up, it seems the business model quest in one sector is having a domino effect with new models needed elsewhere including health and social care.

Leadbeater's piece reminded me of Lean thinking the improvement process with its drive to identify value, reduce waste and repetition. ... His text points out that:

More efficient services quickly move in and out of people's lives, but they don't really change how people live. That is one reason why we have not made deep inroads into the most deprived communities, the most troubled families, the most intractable social problems. Services manage and process people and problems, but only rarely allow people to change their lives. Service solutions are ill-suited to the emerging challenges of the rise of long-term health conditions, diseases linked to lifestyle and diet, ageing or climate change. You cannot deliver a solution to an epidemic of diabetes the way that DHL delivers a parcel.

So any model, method that is primarily process centered may find itself compromised - providing just one cylinder's worth of power in a four cylinder engine. In Hodges' model I have identified the 4Ps. PROCESS, PURPOSE, POLICY, and PURPOSE (to which we must now add PROBITY). It will be interesting to see how value is defined across service forms of engagement, intervention (including signposting) and the new set of outcome measures to follow whether local, national, service-reported or patient reported outcome measures. Leadbeater continues:

The key will be to redesign services to enable more mutual self-help, so that people can create and sustain their own solutions. The best way to do more with less is to enable people to do more for themselves and not need an expensive, professionalised public service. Enabling people to come together to find their own, local solutions should become one of the main goals of public services. Services do a better job when they leave behind stronger, supportive relationships for people to draw on and so not need a service.

So Jo(e) Public needs to reflect, compare, evaluate, learn, collaborate and make informed decisions in order to stay well amongst many other things. They need to be engaged holistically.

Where is the model for this...?

I believe I know.

The Wall Street Journal has something to add here The Doctor Will Text You Now and relating to my earlier posts on 'Beware Reflex Moves'. Relationships matter, but if nurses are out there assessing, assessing, assessing who is doing the education, dividend added therapy outcome focused?

If e-health is going to make a real contribution in augmenting and freeing high value care resources then this in turn depends on the value invested in relationships.

Louis Petrillo, 57, a psychologist in Westfield, N.J., says he regularly turns to his family’s doctor, Robert Eidus, for online advice about his frail 90-year-old mother, who finds office visits difficult. His son who is away at college also used an online visit when he had sinus problems. “I can get into his virtual office anytime,” says Dr. Petrillo. He feels the online care works well largely because Dr. Eidus knows his family members’ regular health complaints.

If older adults move home and need new primary care services, what are most probably(?) well established patient - doctor (patient - primary care team!) relationships are not just undermined they are undone! A person's sense of community is fractured. ...

Yes that image speaks volumes.

Do read the two articles mentioned - excellent.

Image source: Guardian

Mathews, A.W., The Doctor Will Text You Now, JULY 1, 2009, The Wall Street Journal Interactive Edition

Self-care in e-space and the need to Impress

Working with older adults you realise how unselfish a group they are with regards to their care needs: "spend the money on the children who need it, they are the future."

You also realise that although there are growing numbers of 'silver surfers' (sorry) and their number will swell - the use of digital technology by the general public remains yet another potential source of inequality.

Many years ago I came across HealthSpace (UK) as a fledgling approach and application. I was really impressed as it underlined the need for a generic conceptual framework for health and social care - from senior school through to older age.

It is often said that effective communication needs a channel that is noise free - well here in Hodges' model is a resource to reduce noise for health information across many contexts:

• education
• prevention
• consultation
• social marketing
• self-care
• care planning, evaluation and management
  
• carer support
• supervision

Demographics also underlines the opening remark in this post and for older adults and many younger that matter of choice arises when it comes to the deployment of digital technology. Yes, many forward thinking people will readily jump on board and use ICT to study, learn, commission, record and co-ordinate their own care - or that of a relative. But what about those who will not use HealthSpace or another personal health records [PHRs]?

For those who do not want to engage - are they to be literally pressed into service? Obviously not - and besides recruitment to the UK services is growing. Jokes aside though the pressure to get the public to add value to their own care is critical to the future sustainability of the health and social care system.

Which brings me back to HealthSpace and the following news on e-Health Insider:

'HealthSpace expansion plans shelved'

Last year’s Health Informatics Review outlined a wide-ranging role for HealthSpace, but the DH has now done a U-turn and demanded more evidence of the site’s value to patients before pushing ahead with further expansion.
...
An outline business case worth £80m to £90m – one source puts the figure at £98m - had been developed by CfH, which was to have been submitted to the Treasury earlier this year.

However, the DH is understood to have spiked the business case, seeking more evidence for the value of HealthSpace, which has not received the backing of Christine Connelly, director general of informatics.

Dr Neil Bacon, founder of the doctors’ website doctors.net and the patient website iwantgreatcare.org, said he was unsurprised that the DH had shelved its plans.

“I think this is their way of quietly getting rid of it,” he told EHI Primary Care. “In the commercial world, if a solution with more than 250,000 potential users had only been used by 400 people it would already have been put out of its misery.”

Dr Bacon said he believed there was a clear and growing demand for patients to manage their own health records but that innovative, entrepreneurial solutions rather than government-led solutions would meet that demand.

More to follow no doubt - but do take care even now if you live by the coast ....

Additional links:

Google Health

HealthVault Microsoft

DIY doctors: patients can boost NHS's value, 30 April 2009, HSJ, Paul Corrigan

Digital Britain

The Impress Service

The Royal Navy

Image source: Press Gang stamp