Reading: From A to <A> Keywords of Markup

On the way to Colombia I started to read this book in order to review it - more on that to follow. I've only read four chapters so far and it is a fascinating read. A collection of essays each deals with a particular HTML tag and each so far provides new insights for me and resources.

When I came across the invitation for reviewers I read through the index. HTML 5 was not there so I thought the book might suffer from the rate of change in the interval from original conception to publication. Well HTML 5 is not in the index (just HTML), but it is in the text. Drupal and Ruby on Rails also get a mention.

Of particular interest is chapter 4 'alt' by Colleen A. Reilly which combines accessibility and definitions of disability.

I'll start writing the review soon for the Journal of Community Informatics trying to be more concise than previous efforts (I volunteered to learn too). As for W2tQ I've already found several interesting quotes too, such as the example below. This struck me because it's possible to describe h2cm as a keyword collage ...

<A> evokes collagist writings, "interesting networks that open up a conceptual map" McLuhan (258).
Indeed, collage often is the focus of this type of educational/digital education or writing that asks students to merge texts and ideas. <A>, as a social space, though, is not a collage. As a network, <A> builds relationships while also becoming relationships. To enact a pedagogy of <A>, I have to imagine a social software logic as opposed to connection or merging among things. That logic is not bound to a specific platform, such as the Web, but instead informs institutional practices through the generation of large-scale spaces.p.61.

NIH: Suggest social justice items for Electronic Health Records

My source: Spirit of 1848 list [The collaborative tool is very interesting]
Let's make suggestions for inclusion of social justice factors in Electronic Health Records by participating in the NIH activity described below.

Dear colleague,

Your input is requested to help make recommendations for a standardized set of patient-reported variables to be collected in primary care and public health electronic health records (EHRs), which will lead to unprecedented data harmonization and opportunities for health research. In order to participate in this process:

• Please visit the website for the collaborative tool: www.gem-beta.org
• Click on the blue button at the top titled "EHR Campaign." Or alternatively, click on the News tab and then the associated EHR campaign title.
• Read the summary statements written by the expert panels
• Enter your comments on the recommended measures, and if needed, suggest alternative measures (see attachment for detailed instructions).
• Forward this request to your colleagues who may be interested in this initiative

Comments will be accepted through April 4, 2011.

Background about this Collaborative Effort

Several institutes within the National Institutes of Health in collaboration with the Society of Behavioral Medicine are coordinating an effort to identify a core set of brief, practical measures to recommend for use in adult primary care and public health electronic health records (EHRs), and we are inviting you and all members of your affiliated organizations to join this collaborative effort.

The HITECH Act and the Patient Protection and Affordable Care Act place new emphasis on the widespread and meaningful use of electronic health records (EHRs). This is an important advance, with one significant exception: Currently EHRs fail to capture data reflecting crucial health behaviors and psychosocial issues. Such patient-reported variables are both health outcomes themselves, and major determinants of other health outcomes.

To address the critical need for patient-reported data, we are organizing an effort to evaluate and recommend actionable, patient-reported measures of health behaviors and psychosocial factors for use in electronic health records (EHRs) within adult primary care and public health settings. In order to facilitate broad participation in the development of standard measures we are using a three-phase process of consensus building.

In the first phase panels of subject matter experts were convened for each of 13 behavioral domains to review available measures and to recommend up to 4 reliable, practical measures for each domain that would be appropriate to utilize in primary care and public health settings and to be reported in EHRs.

*Your input is being requested for the second and third phases of the project.*

For the second phase we are using the NCIs Grid-Enabled Measures (GEM) Database to gather feedback from all stakeholders. In order to participate in this process, please visit the GEM website, www.gem-beta.org, and click on the blue button at the top titled "EHR Campaign." Or alternatively, click on the News tab and the associated header for the EHR campaign. Begin by reading the summary statements written by the expert panels, view the recommended measures, enter your comments on the recommended measures, and if needed, suggest alternative measures. Comments will be accepted through April 4, 2011.

The third phase will be a workshop/town hall meeting on May 2, 2011 at the NIH bringing together scientists, practitioners, policy makers, and patient/consumer representatives to review the results of this campaign and make recommendations on standard consensus measures for behavioral health and health behavior screening in primary care and public health settings. We encourage everyone interested in this effort to participate, and more information about this meeting will be forthcoming. Immediately following this workshop there will be a closed session meeting of key stakeholders to make final recommendations based on feedback obtained from the GEM tool and the open meeting.

Workshop participants will receive a summary of the meeting as well as information on final recommendations. Subsequent to the meeting, organizers and key stakeholders will discuss strategies to build support and implement plans to advance the adoption and incorporation of a core set of patient-reported behavioral and psychosocial measures in primary care and public health EHRs.

We truly thank you for your participation in this project to standardize the collection of behavioral data in EHRs because it will enable the collaborative group to put forth the best possible recommendations and ultimately improve patient outcomes.

Sincerely,

The EHR Measures Meeting Planning Committee
Maureen P Boyle, Ph.D.
AAAS Science and Technology Policy Fellow
Office of Behavioral and Social Sciences Research
Office of the Director, NIH
31 Center Drive, Building 31, Room B1-C19; MSC 2027
Bethesda, MD 20892-2027

Call for Papers: Special issue on Community Informatics for Health - Journal of Community Informatics

Abstract submissions due 14 March 2011

A special issue of the international Journal of Community Informatics (http://ci-journal.net) is going to be devoted to Health. Community Informatics (CI) is the study and the practice of enabling communities with Information and Communications Technologies (ICTs). This special issue will focus on how the social application of ICTs can empower and enable communities towards improving health. The issue is expected to be published in late 2011. The Journal of Community Informatics is a focal point for the communication of research of interest to a global network of academics, community informatics practitioners and national and multi-lateral policy makers.

The field of community informatics seeks to explore the potential of information and communication technologies and their applications for social and economic development efforts at the community level. It particularly seeks to ensure that marginalized individuals and communities can benefit from the opportunities that ICTs can provide. In the area of health, this is all the more important since those with poorer health status and poorer health outcomes are usually those with less (or no) access to ICTs, or are those who have fewer skills to make use of and benefit from ICTs.

For this special issue of the Journal on Health, we are inviting submission of original, unpublished articles. We welcome research articles, along with case studies and notes from the field. All research articles will be double blind peer-reviewed. Insights and analytical perspectives from practitioners and policy makers in the form of notes from the field or case studies are also encouraged - these will not be peer-reviewed.

Please read the full Call for Papers and more specific information on the intended 'flavour' of the issue at: http://www.flinders.edu.au/medicine/sites/southgate/research/projects/digital-tech-health/

Guest editors:

*  Lareen Newman PhD, Southgate Institute for Health Society & Equity, Flinders University - Australia
*  Ali Al Sanousi MD, King Faisal Specialist Hospital & Research Centre, Riyadh - Saudi Arabia

Contact for queries and abstract submissions:  lareen.newman AT flinders.edu.au

IMPORTANT DATES
Deadline for abstracts: 14 March 2011
Notification of successful abstracts:  9 May 2011
Deadline for submission of full papers/articles: 31 August 2011
Estimated publication date: November 2011

----------------------------------------
Dr Lareen Newman, DipEurLangs (Hons), BA (Hons), PhD
Senior Research Fellow
Southgate Institute for Health Society & Equity
Flinders University - Adelaide, South Australia
Personal page: http://www.flinders.edu.au/people/lareen.newman
Program page: http://flinders.edu.au/medicine/sites/southgate/
CRICOS Provider Number: 00114A

Additional link: h2cm in community informatics ....
Jones, P. (2004) The Four Care Domains: Situations Worthy of Research. Conference: Building & Bridging Community Networks: Knowledge, Innovation & Diversity through Communication, Brighton, UK.

Proximity: Relationships, Records, e-Health - Person-centredness near and far

When data protection and confidentiality is debated "the need to know" is often wheeled out as a rationale for access to personal identifiable data.

See the following:
NHS Confidentiality Consultation - FIPR Response (esp. #18).
DoH, Confidentiality, UK

In addition, if I need to access the record of patient held at hospital 'x' from hospital 'y' what is the health care relationship that prompts and justifies this need?

At present visiting nursing and care homes, you go knowing that data capture and recording (care assessment) is a fundamental requirement. Having a secure laptop for community has long been promised. While tech solutions are available and implemented elsewhere, my lack of such technology prompts me to imagine a future visit. ...

Pulling up at the nursing home I walk up the drive, ring the bell. While I wait the new tablet device in its bag has already introduced itself to the home. As I am allowed in - my identity assured - the tablet continues its dialogue, it:

1. Downloads and updates existing active client data.
2. Downloads additional data as per the agreed dataset on the new referral.
3. Checks on items 1-2 with a review of recent prescribing for key psychotropic medicines.
4. It checks the most recent NICE, Cochrane evidence and reconciling the local care knowledge. (This may seem excessive at present, but come personalised medicine this will be crucial).
5. Will check on most recent clinical reviews and due dates.
6. The h2cm template is there ;-) ready to present the care domain summary for the general physician ... and possibly (roles?) the next care professional to visit this home and this resident.

The significance of relationships is usually denoted by distance. Personal space is rather obviously spatial. This is how we recognise (well one of the ways!) the meaning and significance of an intimate relationship. In care situations with individuals who are confused and potentially aggressive we are conscious of the need to have due regard and respect for that person's personal space. Spaces and boundaries have to be negotiated in a variety of ways and means. 

Health information technology has already made effective use of role-based access to systems. If we take person-centred care to the nth degree, proximity can also count as it does in mobile health (m-health). Whilst to effect a role is to be in a certain location and context (sat at the office PC in the hospital) roles are organisationally and politically defined. Proximity is also contextual and situated in other ways, my proximity to:

• the nursing home;
• the individual's room;
• the individual themselves.
• (and their relatives)

While telecare / informatics can deliver a dividend in remote care, it is essential that it can also demonstrably support person-centred care. The best way (clinically assured) to do that for many activities is person-to-person contact. Just because one-side of the relationship may not recall the encounter as little as five minutes after, does not mean that there is no value in sustaining the ring of the bell, the exchange of s-miles, the record that results and other background conversations.

Image source:
Gestalt - proximity
http://graphicdesign.spokanefalls.edu/tutorials/process/gestaltprinciples/gestaltprinc.htm

Links of interest c/o HIFA2015 list

The following links appeared in recent HIFA2015 Healthcare Information For All posts:

AuthorAID: http://www.authoraid.info/ is a global research community that provides networking, mentoring, resources and training for researchers in developing countries.

IICD - Information and Communication Technologies (ICT) for Development: http://www.iicd.org/

Education for Health: http://www.educationforhealth.net/ an Open Access Journal.

Scientific Eletronic Library Online: Scientific Eletronic Library Online

Welsh Annual Conference 2010: http://www.welshconfed.org/WelshAnnualConference2010.htm

Welsh Information Literacy Framework: http://www.library.wales.org/index.php?id=7498

PLoS journal on Neglected Tropical Diseases: http://www.plosntds.org/home.action

Knowledge 4 Health eToolkits: http://www.k4health.org/toolkits

NCBI.NCI Paper: Poor reporting and inadequate searches were apparent in systematic reviews of adverse effects http://www.ncbi.nlm.nih.gov/pubmed/18394536

Health Speaks: pilots result in 266 new local language health articles http://blog.google.org/2010/12/health-speaks-pilots-result-in-266-new.html

ERMED: Electronic Resources in Medicine Consortium http://www.nmlermed.in/

Global Health and Prevention calendar: http://www.pitt.edu/~super1/lecture/lec40851/index.htm

h2cm = Bayesian Quarters?

INTERPERSONAL : SCIENCES

SOCIOLOGY : POLITICAL

The Bayesian approach allows human insight, subjective though it is, to be combined with statistical information, limited though it may be. It is not surprising that this blurring of the line between the methodologies of the sciences and the humanities has attracted passionate supporters as well as furious enemies on both sides of the cultural divide.

Von Baeyer (2003) p.79.

von Baeyer, H.C. (2003) Information: The New Language of Science, Weidenfeld and Nicolson, London.

Wonk - and the comprehensive health record

As the future unfolds the day will emerge when a 'wonk' - that is, "someone meant to know everything" (Prospect Magazine, Dec 2010, p. 19) is realised in software (or in a termin-ological mix with some "I'll be back" hardware).

The Internet is already envisaged as a giant global graph - a vast intelligence. The health care domains model provides a framework - a graph - to capture what someone or some group of people know about a situation. Policy, practice and values are often rightly based and measured against ideals. In health (and social-) care the comprehensive health record is the ideal. Throw information technology into the mix and you have an ideal of Platonic proportions.

Can you have a complete and ongoing record and still work smart and Lean?

I don't wonk, do you?

Information Revolution and Greater Choice and Control - webchat Nov 9

Put your questions about the Information Revolution and Greater Choice and Control direct to Andrew Lansley, Secretary of State for Health, on November 9 at 1.30pm.

People can ask questions in advance by emailing:
informationrevolution AT dh.gsi.gov.uk - or -

 by Tweeting their question, using the hashtag #inforevolution.

The webchat will be available from November 9 at www.dh.gov.uk/informationrevolution and you can watch the live Q&A on screen, ask questions and leave comments. We will also be tweeting Andrew Lansley's answers and the comments we receive. A transcript of the webchat will be available on the website after the event.

I would be grateful if you could bring this to the attention of any interested individuals or groups.

With best wishes

Anne Cooper
National Clinical Lead for Nursing
Office of the Chief Clinical Officer
NHS Connecting for Health
anne.cooper AT nhs.net
http://www.connectingforhealth.nhs.uk
NHS Connecting for Health supports the NHS in providing better, safer care by delivering computer systems and services which improve the way patient information is stored and accessed.
Additional link:
http://conversations.dh.gov.uk/2010/10/17/home/
My source:
British Computer Society Nursing Specialist Group

New: The Journal of Humanities and Information Systems

Dear colleagues

It is my pleasure to announce a new journal, published by IBIMA, that will cater for articles in the interdisciplinary field of Information Systems and the Humanities (JHIS). This is a call for submissions for the first edtion of JHIS.

JOURNAL DESCRIPTION

The Journal of Humanities and Information Systems (JHIS) is an international peer reviewed and applied research journal that publishes papers on the symbiotic relationship between the two disciplines of Information Systems and the Humanities. Its unique focus will be research on Humanities-enriched IS, but other Humanities-Computing papers and case studies will also be considered. All papers will be subjected to a multiple blind peer review process. Papers should contribute to the existing body of knowledge of the domain in terms of theory and/or practice.

MISSION

JHIS aims to create an international forum to discuss and evaluate studies that implement theoretical constructs borrowed from the Humanities in various aspects of Information Systems, as well as investigations regarding the application of information technology in the Humanities. The creation of
publication opportunities for research with refreshing angles, some borrowed from other sciences, is a conscious effort to share interest and useful research and to counteract rigid procedures that are "stifling the intellectual advancement of our discipline" (Shoib and Nandhakumar, 2009).

SCOPE

Topics of interest for this journal include, but are not limited to, the following list:

• Linguistics and Information Systems
• History and Information Systems
• Art and Information Systems
• Philosophy and Information Systems
• Law and Information Systems
• Hermeneutics and Information Systems

CALL FOR ARTICLE SUBMISSIONS TO JHIS

Since there still are limited publication opportunities for Information System scientists (cf. Straub, 2009:v) in comparison with some other older, well-established disciplines, new opportunities should be embraced and used in order to build our discipline. Therefore, our colleagues are invited to submit some of their research outputs to this new outlet.

ASSOCIATE EDITORS AND PEER REVIEWERS

Please let me know if you would be interested to become an associate editor or peer reviewer of JHIS.
The editors and reviewers of JHIS should be like diamond miners taking a positive view while looking for "exciting forays into new research domains" (Straub, 2009:vii). The general aim in the review processes of this new journal will be to be inclusive and developmental rather than to perform "a
modern hygiene ritual", because we agree with Wastell and MacMaster (2008:64) that "a high rejection rate implies a collective failure of scholarship not the intellectual prosperity of a field".

For more information about the journal and submissions, see:
http://www.ibimapublishing.com/journals/JHIS/jhis.html

Jan H. Kroeze, School of Computing, University of South Africa
(editor-in-chief)

My source:
Humanist Discussion Group, Vol. 24, No. 451
Centre for Computing in the Humanities, King's College London
www.digitalhumanities.org/humanist

HCI 2011 Health, Wealth and Happiness Call for Papers

The 25th British Conference on Human-Computer Interaction (HCI2011)

July 4th - 8th, 2011 at Northumbria University, Newcastle-upon-Tyne, UK.

The HCI Educators conference, Workshops and Tutorials will be held on 4th and 5th July, 2011 and a Doctorial Consortium on the 5th July. The main conference runs from the 6th-8th July, 2011. HCI 2011 is organised by the PaCT Lab (Northumbria University) in cooperation with the British Computer Society.

This year we will be looking for papers to put in our alt.hci sessions. So if you think your work doesn't usually make it into this conference then maybe this year is your year.

Accepted papers will be published by BCS in the annual conference proceedings, freely available online in BCS Electronic Workshops in Computing (eWiC) and will also be included in the ACM digital library.

Important Dates:

• Full Paper and Workshop submission: 21st January, 2011
• Workshop notification of acceptance: 11th February, 2011
• Work in Progress and alt.chi submission: 18th February, 2011
• Short and Posters  submission: 18th February, 2011
• Demos and Experiences submission: 18th February, 2011
• Doctoral Consortium 18th February, 2011
• Panels: 18th February, 2011
• Notification of Acceptance for all other categories: 8th April 2011
• Camera-ready copy for proceedings required by 6th May 2011

Deadline for author registration: 4th May 2011

Conference: 4th July - 8th July, 2011

Conference Scope and Description:

Human Computer Interaction is a key area of computing. This is the leading conference in the field of Human Computer Interaction in the UK. It covers the design, evaluation and application of techniques and approaches for interacting with devices and services.  HCI is now on its 25th conference and at this anniversary we ask you to reflect on our theme of Health, Wealth and Happiness. Technology is posed to play a growing part in our health and maintaining well being into older age; wealth manifests itself in many ways, many of which we do not always recognise - relationships, richness of life experience, creativity and innovation, knowledge and qualities of character. Lastly is there a relationship between happiness and technology use, will more gadgets increase our well being? And as ever contributions in any aspect of HCI are welcome.

Suggested topics:

We solicit original research and technical papers not published elsewhere including the following topics:

• Affective interaction
• Aesthetic interaction
• Art and interaction
• Bodily interaction
• Cyber-relationships, sex and eroticism
• Design and Evaluation methods
• Ethnographic and field studies
• Ethics and HCI
• Experience Design
• Fun and Play
• Health informatics and technology
• Human values
• Information visualization and presentation
• Interaction Criticism
• Moods, meditation and relaxation
• Musical and audio interaction
• Novel interaction techniques and devices
• Privacy, Security and Trust
• Social networking
• Spirituality and Beliefs
• Sustainability and HCI
• Ubiquitous, pervasive, and mobile interaction
• Universal design
• Usability studies
• User Experience
• Wearables and fashion
• Wellbeing and technology

Keynote Speakers

• Abigail Sellon, Microsoft Research, UK
• Gregory Abowd, Georgia Tech, USA

Paper Submission:

Submissions must be in an electronic form as PDF format. All submissions should be formatted to the ACM standard, see http://www.acm.org/sigs/publications/proceedings-templates , and will appear on-line in the BCS EWiCS series and the ACM Digital Library.

Submissions should be made through the EasyChair system, which will open for submissions in November and will be linked from the conference website http://www.hci2011.co.uk/ with detailed instructions. We have put together an international review panel. Submissions will be peer-reviewed by at least 3 peer-reviewers, selected by the appropriate chairs. Additional guidelines can be found on the conference's website.

It is a condition of acceptance that at least one author must register for each accepted paper, no later than the early bird deadline of 4th May 2011.

Drupal musings 18: healthcare group, DrupalCamp and #183

It's a fair trip to Edinburgh from NW England just for one day on the 30th October, but DrupalCamp looks like it will be worth it. I've just booked a room for the Friday night and will set out straight from work.

There's been a Drupal healthcare group for quite a while, now there's also a list of health sites using Drupal:

http://groups.drupal.org/healthcare-sites

One day, one day....!

I'm not sure if this post is contrived: a means of getting to post #183. That was the total for 2009 and here we are already.

If one day, one day is going to happen then this blog is going to slow down soon. No suspended animation though. There will be a pulse.

The involvement of a few link partners on W2tQ is very helpful. It seems the archives are of interest. This not only supports the IT side - future hosting ... but attending events (DrupalCamp travel, B&B) and possibly conferences...

As a full-time nurse I sometimes have to rely on holidays to attend events that really float my boat (or fly my plane). Drupalcons are a case in point. It's not easy trying to simultaneously span nursing, education and informatics, but it really is fascinating [and it makes me :-) ]. Take the following conference:

Celebrating the Past and Embracing the Future:

Evolution and Innovation in Problem-based Learning

March 30th and 31st 2011 in Grange-Over-Sands, Cumbria, UK

I raise this because problem-based learning is a real gift for the health career model, but this gift runs to £235 (which of course for two days training / education is very reasonable - there is a free half-day workshop too). 
So, One day, one day - but meanwhile enjoying the journey and the many bridges. ...

ERCIM News No. 83 Special Theme: "Cloud Computing"

Dear ERCIM News Reader,

ERCIM News No. 83 has just been published at http://ercim-news.ercim.eu/

Special Theme:
"Cloud Computing"
- coordinated by: Frédéric Desprez, Ottmar Krämer-Fuhrmann and Ramin Yahyapour
- featuring the keynote "Cloud Computing: The Next Big Thing?" by Burkhard Neidecker-Lutz, Keith Jeffery, Maria Tsakali and Lutz Schubert.

Next issue: January 2011 - Special Theme: "Intelligent and Cognitive Systems"

Thank you for your interest in ERCIM News.
Feel free to forward this message to others who might be interested.

Best regards,
Peter Kunz
ERCIM News central editor
Follow us on http://twitter.com/ercim_news

Of note in ERCIM #83 :

An Infrastructure for Clinical Trials for Cancer – ACGT Project Successfully Terminated; by Jessica Michel Assoumou and Manolis Tsiknakis
http://eu-acgt.org/

Mastering Data-Intensive Collaboration and Decision Making through a Cloud Infrastructure; by Nikos Karacapilidis, Stefan Rüping and Isabel Drost
http://dicode-project.eu/

Finally, the first issue of 2011 #84 sounds a great prospect!

FROM: A community mental health context TO: Acute EMR/EHR and other ...

or: Will 21st Century health and social care informatics truly begin on Sunday 10 10 10 ?

I've been a nurse AND info tech / informatics enthusiast since 1981. As an advocate of info-tech as a means to improve the quality, effectiveness and safety of health care - I must confess; I feel I have let down those colleagues purely there to 'nurse'. (Don't worry, I am also a realist and post-therapy!).

After 20+ plus years the nearest we (the team and I) got to a system that answered our questions was a small PICK database and a later MS Access database. These focused on referrals and data capture - demographics, problems, interventions (WHO and what) and outcomes. Although the number of data items was not great, no more than 30 the insights we could glean from queries was surprising. People versed with databases, datasets and research readily appreciate how even small datasets, carefully thought out and planned, can answer a diverse range of questions (and generate countless new ones too!).

I noticed in the mid-1980s to mid-1990s the development of customer management software and recognised that clinicians have a need: caseload management.

Even now the requirement of 'X' visits per day, the number of information systems and lack of integration (health - social care) mean that in many instances there is still no readily accessible caseload manager for the individual practitioner. This is an outcome and amid all the talk around 'engagement' (with a 'E').

Perversely, ironically, paradoxically (take your pick) at a time when Lean is (presented and) needed, there are scarce resources to do the things that should now be embedded (routinised) into the life history of the professional. This includes what the professionals do WITH the patients, carers, data, information ...

I speak to student nurses (and other disciplines) regularly as a nurse mentor and sign-off mentor. Their exposure to health care informatics to me is minimal, adhoc, and when it has happened it has signally failed to strike a cord. A very small (and so non-significant*?) sample admittedly.

Informatics remains an academic 'must do'.

Perhaps 21st century informatics only begins on Sunday -

101010

Whatever:
as it stands informatics is a management pursuit.

Slippage is a fact of project management, but words present their own challenge when target driven 'secondary' uses become 'primary'.

*surely not.

[A version of this post first appeared on the Healthcare Information and Management Systems Society HIMSS group on LinkedIn.]

Keeping Research Data Safe (KRDS) Project

From: Neil Beagrie neil at beagrie.com
To: RECORDS-MANAGEMENT-UK at JISCMAIL.AC.UK

I am pleased to announce the release of a new Factsheet from the Keeping Research Data Safe (KRDS) project on the costs and benefits of digital preservation. The Factsheet is available for download as a PDF from http://www.beagrie.com/KRDS_Factsheet_0910.pdf

If you are attending the iPRES 2010 conference in Vienna next week there will be print copies available on the JISC stand.

The A4 four-page factsheet is intended to be suitable for senior managers and others interested in a concise summary of our key findings. It will be relevant to all repositories and institutions holding digital material but of particular interest to anyone responsible for or involved in the long-term management of research data.

The factsheet covers the following major areas:

• Cost issues in digital preservation (what costs most, impact of fixed costs, declining costs over time);
• Benefits from digital preservation (benefits taxonomy, direct benefits, indirect benefits, near-term benefits, long-term benefits);
• Institutional issues (repository models and structures, key cost variables, data collection levels).

We hope the Factsheet will be of value to the digital preservation and research data communities and plan to release a further KRDS publication later this year (a KRDS User Guide).

The Keeping Research Data Safe studies have been funded by JISC and conducted by a partnership of the following institutions: Charles Beagrie Ltd, OCLC Research, the UK Data Archive, the Archaeology Data Service, the University of London Computer Centre, and the universities of Cambridge, King’s College London, Oxford and Southampton.

Neil Beagrie
Charles Beagrie Ltd
Digital Access and Preservation
Management and Research Consultancy

Website: www.beagrie.com
Blog: www.blog.beagrie.com

Drupal musings 15: modules and Drupalcon videos

Since picking up the health career model and publishing the model online in 1986 the term holistic bandwidth has emerged. The blog in 2006 and to date has seen other loosely defined terms:

care architecture
4-fold care
cogneography
holistic competency

Using Drupal 6 I've got to a position were I am getting to know core plus some contributed modules. One of the latter is webforms. It's bound to be help seeing what webforms can do in terms of one-way data submission, compared to using CCK - the content construction kit. In webforms the grid component holds great promise, but in creating a grid for music genres I notice there is no validation (which would be quite a trick!). Users should only be able to select one type of music they want to hear most of the time. The validation question is going to help force the issue of getting under the hood. All that reading revealed in previous posts is also needed to sort the theme too.

I remember first coming across the word instantiate. As I write, think about a h2cm glossary and experiment for real with Drupal 6 - I wonder whether the content types I create (in Drupal 7 especially) may help define some of the above and other terms?

The majority of the sessions from Drupalcon CPH are available on video.
There are some I still need to catch being in other sessions.

Report: Open data, democracy and public sector reform

From: Tim Davies tim@practicalparticipation.co.uk
Date: Wed, Sep 8, 2010 at 2:35 AM

Open data, democracy and public sector reform is a report based on a recent MSc dissertation taking a look at the policy and practice of using open government data from data.gov.uk. It's now up as an online document at -
http://practicalparticipation.co.uk/odi/report/

In looking at how open government data is being used in practice it draws out a number of themes, including:

Data is not just for developers
- there is a tendency to focus on machine-readable data for large scale visualisations and mash-ups; but data can be useful to individual citizens or local citizen activists, finding facts within spreadsheets and campaigning for change locally.

Open government data changes the gatekeepers, and the role of civic actors
- now mainstream media, independent citizens, companies and different levels of government are all afforded the possibility of advancing their own interpretations of data. Government, however, retains some (significant?) gate-keeping power by setting the categories and structure in which data is recorded and released. Debates over the meaning of data become more important - and the capacity of local democratic actors to be part of those debates again needs to be developed.

Open government data can support innovation in public services
- predominantly through improving the 'markets' for public service innovation - allowing social and commercial entrepreneurs to work with government data, and preventing exclusive access to data being an anti-competitive advantage for certain firms. However, the research didn't find cases where open government data was successfully facilitating 'citizen led' forms of public service innovation involving local communities discussing and debating how services operated.

A focus on digitizing government underlies much open government data supply and use, and can lead to concerns of politics, power and justice being under-valued in the development of open government data infrastructure
- and we need more articulation and focus on real-live civic use-cases of open government data to inform the development of open data infrastructures.

All comments and feedback on the report welcome - particularly to help shape thinking about what to do with the research next.

http://www.timdavies.org.uk
@timdavies

Co-director of Practical Participation:
http://www.practicalparticipation.co.uk

My source:
ciresearchers at vancouvercommunity.net

England: The future of the National Programme for IT

Department of Health - 09 Sep 2010 12:32
The future of the National Programme for IT
-----------------------------------------------------

A Department of Health review of the National Programme for IT has concluded that a centralised, national approach is no longer required, and that a more locally-led plural system of procurement should operate, whilst continuing with national applications already procured.

http://www.wired-gov.net/wg/wg-news-1.nsf/lfi/415392

My source: Wired-GOV

Drupal(con) musings 14: design, UI, UX, thinking and care

In his funny and very engaging session 'Designing UI with Seven' at Drupalcon CPH Mark Boulton discussed four user experience (UX) principles and introduced us to ten user interface (UI) guidelines.

Mark highlighted the need for a mental model and the challenge within publishing of there being someone who has the big picture. Who knows exactly what is going on? The health career model provides a model and can provide a canvas to support the big picture.

What really caught my attention though was as soon as Mark asserted -
"Don't make people think." -

I immediately thought -
'Make people care instead'.

Well, I'm not sure if an interface can do what public (mental) health policy, government public funded education programmes and the concerted efforts of the health professions has largely failed to achieve. The users of e-health information systems do need the design of the system to be transparent to them. IT mustn't get in the way. Mark's point of course is the the user's should be free to focus on the problem the system is to help solve. In health this includes:

• recording of a health (and social) care record;
• secure information / file management and access;
• information governance, reporting and archiving;
  
• timely, ready access for those who need to know;
• ability to manipulate the record to obtain knowledge: from data > from information;
• to provide patient (carer as advocate) access and verification;
• remote access with rugged devices.
  
• ...
  

This does not mean that people are oblivious to design: far from it (iThis - iThat!). My point is that as we follow Mark and other design expert's advice then users should be able to focus on care design and the care outputs arising.

So in health we need interfaces and user experiences that DO encourage reflection, thought: thinking.

P.S. In another session (or magazine!?) on creating mobile versions of sites the advice included getting rid of the crap - the clutter, the >1000px width adornments. Rhetoric aside - my design thought would be not to include anything that could be described in this way whatever the media type (maybe I should lighten up!) ;-)

To follow: update on my Drupal efforts.

Paper: Patel et al. (2009) Clinical complexity and medical education

The following item about a paper from last year was posted by Rakesh Biswas on the COMPLEXITY-PRIMARY-CARE list. After Rakesh's comments I have included a quotation.

The paper in question by Patel, et al. will be an important reference for me, even though the definition of domain and discipline remains problematic. (A glossary for the health career model will follow on the new site.)

Suddenly, the passing of time is also clear given that:

Shortcliffe, E.H. (et al.) Ed. (1990) A History of Medical Informatics, Wokingham, Addison-Wesley Publishing Co.

- appeared twenty years ago. Ten years ago I cited Shortcliffe et al..

Twenty years! How long is that in technology / internet terms?

The bold text below is my emphasis:

From: Rakesh Biswas
To: COMPLEXITY-PRIMARY-CARE@JISCMAIL.AC.UK
Sent: Thu, 12 August, 2010 16:41:06
Subject: Clinical complexity and medical education

As our society progresses in the accumulation of knowledge and as the complexity of this knowledge increases, it becomes more important to determine how to structure education to provide individuals with the most comprehensive base of knowledge without sacrificing either depth and complexity or broadness of material.

Human beings have an extraordinary capacity for storing large volumes of organized information in memory. How does one apply such detailed knowledge to practical, real-world problems and situations?

What is the optimal mode of learning that will promote flexibility and transfer of general knowledge across domains during problem-solving?

For more, see the article by Dr Patel whose focus area is Medical Cognition (how doctors think and develop their so called expertise).

Regards,
Rakesh

Here is a quote from the paper:

Much of the early research in the study of reasoning in domains such as medicine was carried out in laboratory or experimental settings. There has been a shift in more recent years toward examining cognitive issues in naturalistic medical settings, such as medical teams in intensive care units [2], anesthesiologists working in surgery[89], nurses providing emergency telephone triage [90], and reasoning with technology by patients [91] in the health care system. This research was informed by work in the area of dynamic decision-making [92], complex problem-solving [93], human factors [94,95], and cognitive engineering [44]. Naturalistic studies reshaped researchers’ views of human thinking, as expressed in ‘‘situativity” theory’s terms (as described in Section 2.1.4) [23–26], by shifting the onus of cognition from being the unique province of the individual to being distributed across social and technological contexts. p.186.

Whilst as Rakesh points out Dr. Patel's focus is medical cognition, then through the health career model it would appear my interest is nursing cognition. As per the legacy of models of nursing - which did recognize the patient through the concept of patiency (Stevens, 1979) - we realise that now all disciplines must demand much more of their respective models in the 21st century.

Patel, V.L., et al. (2009) Cognitive and learning sciences in biomedical and health instructional design: A review with lessons for biomedical informatics education, Journal of Biomedical Informatics, 42, 176–197.
doi:10.1016/j.jbi.2008.12.002

Stevens, B.J. (1979) Nursing Theory: Analysis, Application, Evaluation. Boston: Little, Brown and Company.

iConference 2011

From: Jonathan Grudin
Subject: A personal view on iConference 2011

Hello,

Please publicize iConference 2011, which will be in Seattle February 8-11 and has a submission deadline of August 30.

I’d like to add special encouragement. Some people including me see this as a possible turning point for the Information Conferences. The “iCaucus” has rapidly expanded to include over 25 schools in Europe, Asia, and North America, but more to the point, this iConference is the first to reach outside that community. It has a large, varied, illustrious conference and program committee, whose members have said they will attend. It was organized further in advance. The next conference, in Toronto, is already being planned as well.

Some people note that it feels like CHI in 1983 or CSCW in 1988, a coalescing and opportunity. It may or may not turn out that way, but an astute student or senior person, while not abandoning CSCW or CHI or other venues, might be well-advised to also participate in an iConference or two. (Starting with this conference, proceedings will be in the ACM Digital Library.) When universities ramp up again, iSchools are likely to be hiring. I’ve expressed my vote of confidence by publishing a short paper that I liked a lot in iConference 2010, despite it not being in the ACM DL.

At the end of a recent NSF sociotechnical research symposium, Geoff Bowker gave a spirited exhortation to participate and form the vanguard of the iConference series. In that spirit, please forward this to people who might be interested, encouraging them to consider submitting and to attending.

Cheers – Jonathan

(full disclosure, I’m co-chairing the conference with Harry Bruce – but the conference and its opportunity was the work of those who came before; Geoff was responding the conference as it already exists)

My source: CI researchers list