Showing posts with label citizenry. Show all posts
Showing posts with label citizenry. Show all posts

Monday, September 27, 2010

'Well-being' and the dilution of 'caring'

This blog post was originally drafted on 15 October 2008. Back then I'd noticed how in the media - newspaper, internet, radio and journals - there was increasing references to 'well-being'. It was everywhere. Even now it graces lips, airwaves, video, digital and conference platforms.

I was prompted to write because I actually felt that perhaps the public were being somehow sold a pup. I mean 'well-being' - it sounds wholesome, reassuring and cuddly so go on - take hold, give it a hug and look after it. Maybe it literally is a case of - get up and take it for a walk. You know you need to!

What well-being does do is it forces acknowledgment of physical AND mental well-being. In the summer I bought a copy of the British Journal of Wellbeing [BJW]. BJW features physical and mental health with some really interesting features, reviews and interviews. So, I raised my hands, sighed, stretched (felt much better) and accepted "OK well-being (or wellbeing*) it looks like you will go far."

I just have a worry though. Because the concept of well-being is fuzzy, there is a risk that the care agenda could be diluted at a time when specific health and social care populations and issues arising need to be kept in clear and unequivocal focus. Looking at the content I am reassured - there is depth here too. I say this recognising that the concept of well-being can also serve the health career model very well.

More to follow on BJW and well-being ...

http://www.dictionary.net/well-being

*I like hyphens as in socio-technical

Sunday, September 12, 2010

Report: Open data, democracy and public sector reform

From: Tim Davies tim@practicalparticipation.co.uk
Date: Wed, Sep 8, 2010 at 2:35 AM


Open data, democracy and public sector reform is a report based on a recent MSc dissertation taking a look at the policy and practice of using open government data from data.gov.uk. It's now up as an online document at -
http://practicalparticipation.co.uk/odi/report/

In looking at how open government data is being used in practice it draws out a number of themes, including:

Data is not just for developers
- there is a tendency to focus on machine-readable data for large scale visualisations and mash-ups; but data can be useful to individual citizens or local citizen activists, finding facts within spreadsheets and campaigning for change locally.

Open government data changes the gatekeepers, and the role of civic actors
- now mainstream media, independent citizens, companies and different levels of government are all afforded the possibility of advancing their own interpretations of data. Government, however, retains some (significant?) gate-keeping power by setting the categories and structure in which data is recorded and released. Debates over the meaning of data become more important - and the capacity of local democratic actors to be part of those debates again needs to be developed.

Open government data can support innovation in public services
- predominantly through improving the 'markets' for public service innovation - allowing social and commercial entrepreneurs to work with government data, and preventing exclusive access to data being an anti-competitive advantage for certain firms. However, the research didn't find cases where open government data was successfully facilitating 'citizen led' forms of public service innovation involving local communities discussing and debating how services operated.

A focus on digitizing government underlies much open government data supply and use, and can lead to concerns of politics, power and justice being under-valued in the development of open government data infrastructure
- and we need more articulation and focus on real-live civic use-cases of open government data to inform the development of open data infrastructures.

All comments and feedback on the report welcome - particularly to help shape thinking about what to do with the research next.

http://www.timdavies.org.uk
@timdavies

Co-director of Practical Participation:
http://www.practicalparticipation.co.uk

My source:
ciresearchers at vancouvercommunity.net

Saturday, May 15, 2010

Holistic bandwidth (and the dangers) of political care

The attack on MP Stephen Timms here in the UK highlights not only the ongoing importance of personal safety for public service personnel, but how much politicians value their constituency work. It is no accident that these sessions are called "surgeries".

The politician meets not just a citizen, but a political obligation and duty to care. In the media reports it was interesting to hear of how much satisfaction MPs get from their constituency work. Listening to the reporting and debate prompted me to realise that although politicians vary in how well they engage and empathise with their constituents the problems they are asked to deal with covers a broad holistic spectrum. Consider this listing written by Tony Wright MP:
  • The education system
  • The transport system
  • The social services
  • Health services
  • Housing
  • The environment
  • Government bodies
  • The justice system
  • Immigration and asylum
  • Finances and employment
  • Trade unions
  • The media
I am a community nurse five days a week.

Our MPs are community politicians one day a week with 'Constituency Friday'.

So to The Rt Hon. Stephen Timms (and his staff) I wish you a speedy recovery and congratulations on the extent of you and your peer's constituency work.

Holistic in a word and deed.

Congratulations also to the Green Party on the success of their leader Caroline Lucas MP.

The Health Career Model: POLITICAL domain resources

Saturday, May 1, 2010

Health, social care and informational emaciation

We hear a lot about information and how important it is, being in what is described as the information age, the information economy. ...

Nurses, patients and carers (plus managers) would instantly recognise that if a care plan and subsequent care delivery was based on the following assessment:

oriented, not depressedhypertension, falls, dizziness, headaches, pyrexia
carer due hip operationadmitted 1st May 2010 1200hrs
to clinical decisions unit

- we would be acutely concerned.

Clinically this is a case of informational emaciation. The information above is rather thin on the ground, this in turn affects the knowledge that can be gleaned in formulating, negotiating and agreeing actions. Even in the information sparse example above each of the care domains has some content; is that always the case?

Use of the word emaciated in this context is not intended to diminish the plight of people who are physically emaciated, poorly nourished.

This post is intended to highlight another aspect of poverty.

As the Global Healthcare Information Network (HIFA 2015) argues and campaigns - information is a means to emancipation - a way to overcome information emaciation.

Additional links:

Picker Institute Europe

Patient Information Forum

Patient Information Advisory Group

Sunday, March 21, 2010

Global Pulse 2010 March 29th - 31st #gp2010

I have just registered for:


From March 29th through March 31st you will have the chance to participate in something truly exciting. Inspired by President Obama’s “New Beginnings” speech to Cairo University, the U.S. Government is hosting Global Pulse 2010, an innovative, online brainstorming discussion.

During this unique event, individuals throughout the world will have a chance to participate in and influence a global conversation centered on 10 hot-button social issues facing the global community within the fields of science and technology, entrepreneurship, and human development.

MARK YOUR CALENDARS!

GANM's - Dr. Patricia Abbott will be a featured expert during the event. She will host a discussion on E-Health from 11:00am-noon (eastern time) on March 30, 2010.

Why is Global Pulse 2010 important?

Global Pulse 2010 will offer a unique way for community members to connect and engage, build new relationships and share their ideas on how we can strengthen our global partnerships to better address our shared global challenges.

Global Pulse 2010 is an open forum that will highlight ten broad topics:
  • Empowering Women and Girls
  • Enabling Essential Education
  • Building Stronger Partnerships
  • Exercising Political and Civil Rights
  • Inspiring a New Generation
  • Promoting Global Health
  • Advancing Entrepreneurship, Trade & Economic Opportunity
  • Fostering Science, Technology & Innovation
  • Supporting a Sustainable Planet
  • Pursuing Grand Challenges
How to Register for Global Pulse 2010?

To register please visit:https://www.collaborationjam.com/minijam3/globalpulse2010/registration/
For more information, please visit us at www.GlobalPulse2010.gov

You may also join us on Facebook, Twitter, Orkut, and LinkedIn to stay up to date on key Global Pulse 2010 activities. Stay tuned for more information on Global Pulse 2010!

PLEASE NOTE: We want to hear from your network. If you know of others who would be interested in participating in this event, please feel free to forward this email. As there are a limited number of virtual seats in Global Pulse 2010, we ask that these individuals complete and submit this brief form available at www.GlobalPulse2010.gov/registration Pending the number of available seats, slotted individuals will be notified so that they may then formally register to participate in Global Pulse 2010.

My source:
GANM (Global Alliance for Nursing and Midwifery)

Tuesday, January 26, 2010

Call for case experiences on capacity development - final 2 weeks to enter

Dear Peter,

The Impact Alliance is working closely with the UNDP to gather capacity development experiences from around the world as part of the 'Capacity
is Development' campaign. The members of our network have some amazing experiences to share, and this is a great opportunity to showcase your hard work, grow the knowledge base of what works and influence policy makers. We look forward to hearing from you!

The United Nations Development Programme is pleased to announce the opening of the 'Capacity is Development' Knowledge Fair and invites you to share your experience. The knowledge fair seeks to collect experiences on policies, investments and programs that have proven successful in driving human and institutional capacity development in diverse settings around the world. These experiences will feed directly into the 'Capacity is Development' global event.

We invite you to submit an entry by Friday, 5 February, 2010.

Your entry can take the form of a short two-page case story, video or image.

The top five finalists will be awarded an expense paid trip to personally showcase their work at the 'Capacity is Development' global event in Marrakech, Morocco 17-19 March, 2010.

Entries should attempt to illuminate through words or images the impact of capacity development in practice. While diverse expressions of capacity development are welcomed, there is a special interest in gathering stories from three priority focal areas:
  • Sub-national capacity development: local solutions, national strengths.
  • Capacity development in post-conflict and transitional situations.
  • Fostering the rise and resilience of middle-income countries.
For more detailed guidelines and online entry forms please visit:

www.capacityisdevelopment.org/knowledgefair or contact us at capacityisdevelopment@gmail.com for any questions or to simply alert us about an interesting experience.

Please forward this message to other networks and colleagues.

The UNDP Capacity Development Group is working in partnership with the Impact Alliance and LenCD - Learning Network on Capacity Development to implement this initiative.

(I am adding a link to this event at the POLITICAL domain resource page.)

Friday, January 15, 2010

Were you born in 1989? Join the EU "Generation '89" project!

Are you a citizen of Austria, Belgium, Bulgaria, the Czech Republic, Germany, Hungary, Poland, Romania or the UK?

Meet people from your generation!
Join the "Generation '89" project!


You have the chance to participate in one of the simultaneous meetings in Brussels, Bucharest, Prague or Warsaw, and to present the Declaration "Generation '89" to EU representatives in Brussels!

Application deadline: 31 January 2010 (10 February for Belgium and Poland)

More info at www.generation89.eu

With the support of the "Citizenship" Programme of the European Union.

GENERATION 89

The project "Generation 89" proposes to commemorate the fall of the communist systems in the European countries, through the lens of the young people born in 1989. The young people from Czech Republic, Romania, Poland, Belgium, UK, Germany, Hungary, Austria and Bulgaria and have had different historical context in which they lived their lives, and one of the objectives of this project is to bring together these youngsters and to offer a space where they can share experiences and expectations for the future. In order to attain this objective, 4 international meetings will be organised in Prague, Bucharest, Warsaw, and Brussels, where for two days the participants will have a various programme focused on two themes: national past and European future.

The programme will comprise movie screenings and debates on the events from 1989, as their parents' generation lived and storied them, informational session regarding the EU policies in the matter of youth and young professionals, workshops focused in drafting a Declaration upon how they perceive their future in EU, a documentary visit to a local organisation with activity in the field of communist systems studies, sightseeing and international night. A second meeting in Brussels of a delegation of the young representatives will be organised with the EU representatives, in order to present the Declaration "Generation 89" and the young people opinion on the future of Europe and their future as citizens of EU. With the support of the "Citizenship" Programme of the European Union.

www.generation89.eu

Image source: Globe - Europe Registrarism

Monday, December 14, 2009

Online Deliberation: Design, Research, and Practice

This is the website for the book Online Deliberation: Design, Research, and Practice, edited by Todd Davies and Seeta Peña Gangadharan (CSLI Publications, November 2009).

All content on ODBook.Stanford.Edu is licensed under a Creative Commons Attribution-Share Alike 3.0 Unported License.

My source: Community Informatics list.

Saturday, May 30, 2009

Political shortsightedness and the power of nuclear weapons

The political expense debacle for ALL the main political parties* here in the UK and the consequences have numerously been described as 'fall-out'.

Although the lasting image is one of MPs staring into the headlights, there are many politicians who must be quietly pleased. When you listen to the leaders explain how the mess will be fixed, they appear to treat the expenses shinannighans as the problem that demands political reform. Once expenses are transparent and the public reassured then the problem is resolved and democracy will be strengthened.

As the political domain links at Hodges' model has attested for many years (and this resource merely scratches a personal political itch) politics covers rather more than 'expenses' and their governance. Long term calls for reform have included aspects of government and democracy beyond the clamour over the voting system. There is a need for global political reform and if this needs to start at a national level from the 'bottom' (literally in this case) -up then so be it. Ideally though political reform must happen in several quarters simultaneously. That is, socially, nationally and reform of the UN. This is happening and through the activism of various World Citizenry - Global Parliament initiatives that exist.

A meeting of minds is not enough: there is a need for a meeting of global consciousness. On a more mundane level - for Westminster the politicians and voters must wake up and grasp the opportunity for wider political reform.

A nuclear blast gives rise to much more than expense laden fall-out.

What about:
  • Overpressure
  • Electromagnetic pulse
  • ....?
Just like clean-up and decommissioning in the nuclear industry, reform and cleaning up the bloat and detritus of political institutions is complex, labour intensive, time consuming, scary for some. Oh yes, and probably expensive too....

*And a shot across the bows for all the others!

Hodges' model: POLITICAL domain resources

Wednesday, April 15, 2009

ERCIM News 77 - special theme "Future Internet Technology"

The latest edition of ERCIM News has just been published at: http://ercim-news.ercim.org/

Special Theme: "Future Internet Technology"


The Internet is undoubtedly permeating and transforming all aspects of our economies and societies. It is a remarkable catalyst for creativity, collaboration and innovation and more broadly, for the development of our economies and societies. A few examples: in 1998, Google indexed 26 million web-pages, today it indexes 1 trillion; Within only five years, Facebook and MySpace have attracted each more than 100 million users world wide; user-generated content such as YouTube produced more than 73 billion streams in 2008; with around four billion mobile users world wide, the Internet is becoming more and more mobile and capable to support a range of new applications and services that were not foreseen in its original design. Read more...


My source: ERCIM - the European Research Consortium for Informatics and Mathematics - mailing list.

Friday, April 10, 2009

Data sharing, privacy, health, citizenry.... "Database State"

In February (2009) I ventured that the degree of sensitivity that members of the public ascribe to their personal data is undergoing quite a change. This change is not without its own chaotic dynamic since the change is one of general laissez faire, until an individual finds themselves 'wronged'. Then watch the litigation flow. That initial laissez faire attitude may please some in government as it makes it easier to introduce yet more data farming, gathering, and harvesting legislation and join up what are usually (or should be) disparate data repositories.

I don't read the gutter press and 'lighter' forms of reading, but the exposé in such publications that include - as per the market 'requirement' - very personal data, information and knowledge must have an influence on how the populous view their own data? For health and social care professionals of course they had better continue to hold 'personal data' in the 'highest of esteem', especially in these digitally conjoined times.

Last month The Joseph Rowntree Reform Trust published a report "Database State" calling in question the legality of several public sector databases. The response to these findings is awaited. ...

Statebook logoMeanwhile the website Statebook seeks to parody and yet make a point about the changing data times we live in. Whilst in response to such a critique there are calls for independent oversight, the difficulty lies in ensuring such bodies are not dentally challenged....

Additional links:

http://www.jrrt.org.uk/

http://www.opendemocracy.net/article/email/the-database-state-were-in

Open Rights Group

Hodges' model: Political domain links

Wednesday, February 25, 2009

Oh dear! I forgot to ask the nurse (doctor)....

Hodges' model introduction II:

The view from the other side of the fence


Have you ever been to see the doctor or nurse and shortly after leaving the surgery, or clinic you've remembered something? These days - very sadly - many people go to the doctor to seek help for their memory, but for others this is a fact of that frustrating mix of vital questions and issues to raise amid recognition that the time of nurses and doctors is very precious.

This post introduces a framework that can help people to prepare for a consultation and maintain a record of just where their care situation is up to. The framework in question is called Hodges' model. It is named after a retired Senior Lecturer called Brian Hodges who lives in Sheffield, England. Brian Hodges created the model to help nurses and community staff ensure the care they deliver is holistic. Holistic in this sense means covering all the essential aspects that contribute to health and well-being, so that includes physical, emotional and mental and even spiritual health.

If you need to go into hospital you do not want to be treated like a faulty machine. Of course, in an emergency those machine-like things we do like heart beat, respiration, temperature regulation are of central importance. Should you ever need emotional care for a severe mental health problem then you would also expect that your physical needs are taken fully into account. Amidst these aspects of care the health care team must also pay attention to culture, equality, diversity and access to services.

Although the model was developed in the 1980s its relevance and potential increases in all the time. This is because of the following:

* health care and medicine is increasingly complex;
* people may have long term and multiple chronic problems;
* education is essential to 21st century care management - as people are expected to 'self-care';
- people may also be managing their own care budget and so need information and 360 vision;
* policy makers stress the need for 'patient choice';
* high quality health and social care is very expensive;
* as people live longer and may have several relationships spanning cultures and belief systems the notion of a health career is the career.

Hodges' model builds on two basic facts of life (and death):

From your point of view and that of any health or social care professional your health is about you - an INDIVIDUAL.

Your health affects other people - most significantly your family. Rather than you being ill, you may of course be a carer having to look after a relative. Also affected are work colleagues, the wider community through to whole GROUPS of people.

We now talk about medicine, well-being, and health in terms of global health since the population of Earth is so tightly linked and interdependent.

In order to maintain health there is a need to diagnose and intervene - or assess, plan, intervene and evaluate. Here the model can also take into account ethnic and transcultural aspects of health. Diagnosis and intervention in Western medicine is frequently MECHANISTIC and this is balanced (remember that HOLISTIC part of the model) by the need for HUMANISTIC interventions. This is what we mean by 'bedside manner' and people being 'caring'. The ability to empathise with others and develop a therapeutic rapport after physical and emotional trauma is a great gift - that while often innate can also be learned and honed.

Once Brian Hodges had identified the following dimensions of care:

INDIVIDUAL - GROUP and HUMANISTIC - MECHANISTIC

he considered the types of knowledge that health and social care workers need to not only do their job safely, effeciently and effectively, but also help people to help themselves. This led to the FOUR CARE or KNOWLEDGE DOMAINS, each covers a key aspect of care:

SCIENCES: e.g. anatomy, physiology,healing process, drugs, risk, diagnosis...

INTRAPERSONAL: e.g. mood, thinking, beliefs, communication, education, learning, coping...

SOCIOLOGY: e.g. relationships, roles, meaning, groups, resources

POLITICAL: e.g. choice, consent, autonomy, policy, legislation, finances

Students - young and mature - who decide to study health and social care can use the model to help them reflect on critical events in their training and learning. The model can help them gain some insights in completing essays and case studies integrating knowledge and experience. When you think about it: if it essential that care professionals are able to have an effective dialogue with patients and the public then they should also be capable of having an effective 'dialogue' with themselves.

Members of the public can also be taught the model to help them appreciate the factors involved in their care programs, solutions and ongoing management if required. Hopefully this brief explanation sheds some light on the model's mantra:

Hodges' Health Career (Care Domains) Model: h2cm
h2cm: help 2C more - help 2 listen - help 2 care

Hodges' model is no universal panacea it is just a tool; but while services stress the need for person-centered, integrated, value-for-money, high quality services ... built on respect, dignity, trust and choice - YOUR health career matters.

h2cm can help pull the many threads together....

<>

On the website's homepage there are four introductions based upon the care domains. Each one addresses a particular audience: learners (SCIENCES); patient (INTRAPERSONAL); carer (SOCIOLOGY) and policy maker / manager (POLITICAL). They all need updating (re-writing?!).

If you would like to contribute to this exercise please contact me through twitter or at h2cmng at yahoo.co.uk

Sunday, February 22, 2009

Carlin How - a new Digital Village

From: "Thompson, Steve"
To: ciresearchers@vancouvercommunity.net; ciresearchers@vancouvercommunity.net; pradsa@googlegroups.com
Sent: Saturday, 21 February, 2009 21:07:21
Subject: [ciresearchers] Carlin How - a new Digital Village

Hi,
Here's a chance to follow one of these things from the beginning. 500 leaflets went out on Monday to all the houses in Carlin How inviting people to the community centre for a cup of tea, a biscuit and a chat. On the Friday noon session only one woman turned up but she was keen and I said that she was all we needed to make a start. In the evening she returned along with four others. We talked about other closeby Digital Villages including their close neighbour Skinningrove who were at this very position 9 years ago. We had a great chat about village life as well as the heritage and the history and the origin of the Village name. We're about to make a start. It's very tentative and I sensed some nervousness. This will take careful handling.

View Larger Map

http://digitalvillage.org.uk/carlinhow/

This is the last time I'll add any content. Watch this space. It may take off or it may not. Who knows, it's an adventure beginning.
Steve T

Steve Thompson
Community Engagement Coordinator
Institute of Digital Innovation
University Of Teesside
E- s.d.thompson@tees.ac.uk

Ack: Thanks and good luck to Steve and the community of Carlin How.

Additional links:

Ashton-in-Makerfield Community Forum
P Jones is not directly involved in this forum


Portslade Community Forum

POLITICAL links - see 'Community Informatics'

Saturday, February 21, 2009

Patient or Customer?: Caring under a panoply of words

Through twitter I came across a blog post 'Should patients be treated as customers' at Kevin MD.

I posted a comment and this post develops the thoughts there....


There is a panoply of words we apply in the various contexts covered by health and social care. Those associated with patient are subject to ongoing debate...

I use the word 'panoply' on purpose because individuals and services can hide behind words - or jargon - as we all do, using words as a defensive shield.

Panoply struck me with its multiple meanings. As definitions reveal the word suggests an abundance of something - 'flags'! Panoply also suggests something covered. A need to protect as per the meaning applied to armour.

A friend - a retired nurse - recently had an in-patient experience that proved rather shocking in terms of the past 3-4 decades of nursing theory and practice. During this time of course the nursing literature has espoused the need for individualised nursing care. All that effort according to my friend's particular patient experience or customer journey suggest that nursing has not moved on.

Perhaps there is a perpetual policy irony (PPI?!) that sets wiser heads rocking to-and-fro: the more something is in vogue - written and talked (flagged) about - the less it really applies in reality?

Which brings me back to KevinMD's post. There is and needs to be a tension between patients as passive players in the sense of them being (allowed to be) patients; and patients as members of the public with experience to translate into service improvement and change. Patients are also citizens - taxpayers and many of whom have a desire to push up the quality and accessibility of health and social care services.

The first stumbling steps of PROMS (patient reported outcome measures) is now under way to gauge quality and outcomes.

'Patients' will tend to be viewed as 'customers' when the systems used to collect their 'satisfaction ratings' of the 'patient experience' are adapted from existing CRM applications: re-engineered - tinkered and tailored - to suit another industrial commercial niche or market sector.

This is not to be cynical, it is being realistic about the commercial realities in which health and social care is practised.

There's a dated concept in nursing theory (and medicine) patiency. When does patiency begin? When does it end? Perhaps it is time to revisit this from an informational perspective?

If the public is engaged as per the Patient Public Initiative then (idealistically) they can 'shop around' before they extend their health career reach to the mobile paramedics (strategically sited around the community) and possibly on through to A&E. Then the public has acted politically and socially prior to their need to engage in the actual care processes themselves.
<>

Here's the post on the 'public' and the sanctity of records which includes some additional links...

(Confidential) Letter to self - and you, and you, and you... ?

http://hodges-model.blogspot.com/2009/02/confidential-letter-to-self-and-you-and.html

http://snipurl.com/beqf7 [hodges-model_blogspot_com]

Wednesday, January 21, 2009

First NHS Constitution Launched

FIRST NHS CONSTITUTION LAUNCHED

An historic signing ceremony to mark the launch of the NHS Constitution for England took place at Downing Street today. The Constitution, the first of its kind in the world, was signed by Prime Minister Gordon Brown, Health Secretary Alan Johnson and NHS Chief Executive David Nicholson.

The Constitution will give power to patients and the public by bringing their existing rights together in one place so they know what they are legally entitled to – and how they can exercise their rights as well as understanding their responsibilities. It also contains a range of pledges to patients, public and staff, which the NHS is committed to achieving. For NHS staff, the Constitution will mean an NHS-wide commitment to equipping them with the tools, training and support they need to deliver high quality care for patients.

Lord Darzi’s review of the NHS, High Quality Care for All concluded last summer that there was a case for an NHS Constitution to enshrine the principles and values of the NHS in England. The landmark document will put in one place what patients, staff and the public can expect of the health service. It is designed to safeguard the future of the NHS and renew its core values, making sure it continues to be relevant to the needs of patients, the public and staff in the 21st century.

Health Secretary, Alan Johnson said:

“This is a momentous point in the history of the NHS. Following on from Lord Darzi’s Next Stage Review, the launch of the NHS Constitution shows how its founding principles still endure today and have resonance for staff, patients and public alike. It will ensure that we protect the NHS for generations to come.

“The content of the Constitution is based on discussions with thousands of NHS staff and patients across the country and will form the basis of a new relationship between staff and patients – a relationship based on partnership, respect and shared commitment where everyone knows what they can expect from the NHS and what is expected from them.”

The Constitution is the result of extensive consultation with staff and patients, which was led by strategic health authorities and overseen by independent experts on the Constitutional Advisory Forum (CAF). In response to the consultation and report published by the CAF, the final Constitution includes:

  • A right to makes choices about your care and to information to help exercise that choice;
  • A new legal right to receive the vaccinations that the Joint Committee on Vaccination and Immunisation recommends that you should receive under an NHS-provided national immunisation programme;
  • A right making explicit your entitlement to drugs and treatments that have been recommended by NICE for use in the NHS, if your doctor says they are clinically appropriate for you;
  • A right to expect local decisions on funding of other drugs and treatments to be made rationally following a proper consideration of the evidence;
  • Clear and comprehensive rights to complaint and redress.

David Nicholson, NHS Chief Executive said:

“Ara Darzi asked me in his interim report to lead a work programme exploring the merits of a Constitution for the NHS. This has been a fantastic opportunity to listen to what matters most to our patients, public and staff and to use this to set out clearly the values and purpose of the NHS system.

“It also pulls together in one place what the patients who use the NHS, the public who fund it and the staff who provide it, can expect to receive from the NHS, and the contribution they can make themselves.

“I’m proud to sign off the Constitution today and am sure that it will be a powerful driver of change in the system, and help us to deliver care fit for the 21st century.”

Professor Steve Field, Chairman of the Royal College of [General] Practitioners, said:

"By stating that patients have a responsibility to register with a GP practice, the NHS Constitution reinforces the central role of the GP and the importance of continuity of care in the NHS today and in the future.

"We become GPs because we want to help people improve the quality of their lives through better healthcare. GPs want to provide the solutions and lead improvements and innovations. Having the Constitution in place will help us improve standards and care for all our patients, whoever and wherever they are.

"The new NHS Constitution is something which all GPs, their practice teams and NHS staff can commit to and have confidence in. I'm convinced that it will be an important, defining point in the development of our NHS."

Sally Brearley, Chair of the Patients Forum said:

“The NHS Constitution is a very valuable re-affirmation of the principles and values of the NHS. I was delighted to be involved in the process of drawing it up. It demonstrates the commitment of Government to the NHS, and of the NHS to its patients. We know that the public supports the NHS. The Constitution provides an important opportunity for patients, public and NHS staff to focus on giving our best to the NHS, and getting the best out of it.”

Also published today are the Handbook to the NHS Constitution; a Statement of NHS Accountability; regulations, directions and guidance to support the new rights around choice, vaccines and the funding of drugs and treatments; and our response to the consultation and the CAF’s recommendations.

The Health Bill, published last week, will underpin the new Constitution by creating new legislation to ensure that the Constitution will be reviewed every 10 years and a duty on NHS bodies, as well as independent sector and third sector providers of NHS services, to have regard to the Constitution.

ENDS

My source: COI’s News Distribution Service is the public sector leader in the electronic delivery of news releases and information direct from Whitehall departments, and more than 100 agencies and non-departmental public bodies, to the national, regional and specialist media. COI’s News Distribution Service is the public sector leader in the electronic delivery of news releases and information direct from Whitehall departments, and more than 100 agencies and non-departmental public bodies, to the national, regional and specialist media.

Additional links: Patients, Carers and Citizenry resources:

Patients Forum
Hodges' model:
SOCIOLOGY Knowledge Domain - Patients and Carers ...
POLITICAL knowledge Domain - Citizenry, Activism ...

Thursday, January 1, 2009

"EU: 50 years of rights and opportunities" a sort of "Encyclopaedia of European programmes"

Happy New Year to one and all....

How time flies! 2007 was a 50th anniversary for the EU, here are details about a valuable free resource about EU programmes....

If printed it would be like a book of 5,000 pages...

eu together logoIt is the multimedia Guide "50 years of rights and opportunities" a sort of "Encyclopaedia of European programmes" published by a network of social organization, as part of a project run in the frame of the Europe for citizens programme of the European Union.

The guide, available online at www.together50years.eu and also on a Cd-rom distributed for free, contains information on initiative and programmes in the fields of citizenship, culture, training, participation and job opportunities promoted by European institutions (not only the European Union but also the Council of Europe).

In the guide there's also a list of about 150 international institutions and offices offering training, internship and job opportunities to young people, graduated or not.

A NON-EXHAUSTIVE list of the programmes, initiatives and services included in the Guide, contains:

- Youth in Action
- Longlife learning (Leonardo da Vinci, Socrates, Comenius, etc)
- Culture 2007
- Tempus III
- Media
- Progress
- Executive Training Programme
- European Social Fund
- Junior Professional Officer
- UE-Canada Co-operation
- UE-USA Co-operation
- UE-Australia Co-operation
- Ue-Japan Co-operation
- Erasmus Mundus
- Aschberg-Unesco Bursaries
- Atlantis
- Eures
- Cedefop
- Epso
- Eqf
- Europass
- Eurodesk
- SALTO

...and many more...


On the website you'll also find how to acquire the Cd-Rom.

For further information do not hesitate to contact us at info@together50years.eu

My source: received from together50years.eu