Showing posts with label records. Show all posts
Showing posts with label records. Show all posts

Thursday, March 3, 2011

NIH: Suggest social justice items for Electronic Health Records

My source: Spirit of 1848 list [The collaborative tool is very interesting]
Let's make suggestions for inclusion of social justice factors in Electronic Health Records by participating in the NIH activity described below.

Dear colleague,

Your input is requested to help make recommendations for a standardized set of patient-reported variables to be collected in primary care and public health electronic health records (EHRs), which will lead to unprecedented data harmonization and opportunities for health research. In order to participate in this process:
  • Please visit the website for the collaborative tool: www.gem-beta.org
  • Click on the blue button at the top titled "EHR Campaign." Or alternatively, click on the News tab and then the associated EHR campaign title.
  • Read the summary statements written by the expert panels
  • Enter your comments on the recommended measures, and if needed, suggest alternative measures (see attachment for detailed instructions).
  • Forward this request to your colleagues who may be interested in this initiative

Comments will be accepted through April 4, 2011.

Background about this Collaborative Effort

Several institutes within the National Institutes of Health in collaboration with the Society of Behavioral Medicine are coordinating an effort to identify a core set of brief, practical measures to recommend for use in adult primary care and public health electronic health records (EHRs), and we are inviting you and all members of your affiliated organizations to join this collaborative effort.

The HITECH Act and the Patient Protection and Affordable Care Act place new emphasis on the widespread and meaningful use of electronic health records (EHRs). This is an important advance, with one significant exception: Currently EHRs fail to capture data reflecting crucial health behaviors and psychosocial issues. Such patient-reported variables are both health outcomes themselves, and major determinants of other health outcomes.

To address the critical need for patient-reported data, we are organizing an effort to evaluate and recommend actionable, patient-reported measures of health behaviors and psychosocial factors for use in electronic health records (EHRs) within adult primary care and public health settings. In order to facilitate broad participation in the development of standard measures we are using a three-phase process of consensus building.

In the first phase panels of subject matter experts were convened for each of 13 behavioral domains to review available measures and to recommend up to 4 reliable, practical measures for each domain that would be appropriate to utilize in primary care and public health settings and to be reported in EHRs.

*Your input is being requested for the second and third phases of the project.*

For the second phase we are using the NCIs Grid-Enabled Measures (GEM) Database to gather feedback from all stakeholders. In order to participate in this process, please visit the GEM website, www.gem-beta.org, and click on the blue button at the top titled "EHR Campaign." Or alternatively, click on the News tab and the associated header for the EHR campaign. Begin by reading the summary statements written by the expert panels, view the recommended measures, enter your comments on the recommended measures, and if needed, suggest alternative measures. Comments will be accepted through April 4, 2011.

The third phase will be a workshop/town hall meeting on May 2, 2011 at the NIH bringing together scientists, practitioners, policy makers, and patient/consumer representatives to review the results of this campaign and make recommendations on standard consensus measures for behavioral health and health behavior screening in primary care and public health settings. We encourage everyone interested in this effort to participate, and more information about this meeting will be forthcoming. Immediately following this workshop there will be a closed session meeting of key stakeholders to make final recommendations based on feedback obtained from the GEM tool and the open meeting.

Workshop participants will receive a summary of the meeting as well as information on final recommendations. Subsequent to the meeting, organizers and key stakeholders will discuss strategies to build support and implement plans to advance the adoption and incorporation of a core set of patient-reported behavioral and psychosocial measures in primary care and public health EHRs.

We truly thank you for your participation in this project to standardize the collection of behavioral data in EHRs because it will enable the collaborative group to put forth the best possible recommendations and ultimately improve patient outcomes.

Sincerely,

The EHR Measures Meeting Planning Committee
Maureen P Boyle, Ph.D.
AAAS Science and Technology Policy Fellow
Office of Behavioral and Social Sciences Research
Office of the Director, NIH
31 Center Drive, Building 31, Room B1-C19; MSC 2027
Bethesda, MD 20892-2027

Wednesday, December 15, 2010

Call for Papers - 2011 CHI Workshop on Bridging Practices, Theories, and Technologies to Support Reminiscence

CALL FOR PAPERS

CHI Workshop on Bridging Practices, Theories, and Technologies to Support Reminiscence 2011
http://www.cs.cornell.edu/~danco/remchiwork/

CHI 2011 Workshop

This one-day workshop explores how HCI-related practice and research can understand and support reminiscence. The workshop has two main goals. First, we hope to bring together academics and practitioners from a variety of backgrounds, disciplines, levels of experience, and approaches to studying and supporting reminiscing. Second, we hope to explore a variety of topics around current and potential uses of technology to support reminiscence, including but not limited to:

- understanding people's current practices around reminiscing;
- exploring empirical studies and theories of memory that might inform technology designs;
- presenting, critiquing, and evaluating existing technologies for reminiscence,
- considering how technology might support new reminiscing practices, and
- supporting social aspects of reminiscence.

We are particularly interested in participants from outside the CHI community to foster new perspectives and collaborations. Our plan is to conduct three short discussion-focused panels organized around participants' interests. Those discussions will ground small groups in articulating interesting directions, studies, designs, and outlines of potential grant and book proposals at the intersection of reminiscing and technology

SUBMISSION

Interested participants should mail position papers of up to 6 pages in .pdf versions of the CHI Extended Abstracts format to danco at cs.cornell.edu by January 14, 2011. Papers should clearly express how the authors' participation will further the goals of the workshop: what do authors offer and hope to gain by participating? They should also clearly, but briefly, present participating authors' backgrounds, in order to support our goals of creating a diverse group of participants.

We will notify accepted participants on or before February 11, 2001. A limited amount of funding will be available, primarily to support attendance for people from other disciplines who are not regular CHI attendees. The workshop will be held on Sunday May 8, 2011 in Vancouver, Canada. Please note that at least one author of an accepted position paper must register for the workshop and for one or more days of the CHI 2011 conference.

IMPORTANT DATES

- Jan 14, 2011: Position papers due
- Feb 11, 2011: Notifications of participation
- Apr 1, 2011: Final versions of position papers (to be shared with other participants)
- May 8, 2011: (Sunday) The workshop! (Here's the list of all workshops.)
- May 9-12 2011: CHI itself

ORGANIZERS

- Dan Cosley, Information Science, Cornell University danco at cs.cornell.edu
- Maurice Mulvenna, School of Computing and Mathematics, University of Ulster md.mulvenna at ulster.ac.uk
- Victoria Schwanda, Information Science, Cornell University vls48 at cornell.edu
- S. Tejaswi Peesapati, Information Science, Cornell University stp53 at cornell.edu

Friday, November 26, 2010

Wonk - and the comprehensive health record

As the future unfolds the day will emerge when a 'wonk' - that is, "someone meant to know everything" (Prospect Magazine, Dec 2010, p. 19) is realised in software (or in a termin-ological mix with some "I'll be back" hardware).

The Internet is already envisaged as a giant global graph - a vast intelligence. The health care domains model provides a framework - a graph - to capture what someone or some group of people know about a situation. Policy, practice and values are often rightly based and measured against ideals. In health (and social-) care the comprehensive health record is the ideal. Throw information technology into the mix and you have an ideal of Platonic proportions.

Can you have a complete and ongoing record and still work smart and Lean?

I don't wonk, do you?

Tuesday, October 5, 2010

DATUM for Health: Research data management training for health studies

We are delighted to announce this new project being conducted at Northumbria University:

'DATUM for health’ is a collaborative project which seeks to promote research data management skills of postgraduate research students in the health studies discipline through a specially-developed training programme which focuses on qualitative, unstructured research data.

It is being led by the School of Computing, Engineering and Information Sciences at Northumbria University in partnership with colleagues from the School of Health, Community and Education Studies and The Graduate School. External partners are the Digital Curation Centre (http://www.dcc.ac.uk) and the Digital Preservation Coalition (http://www.dpconline.org
Starting on 1st October it will run to 31st July 2011.

The project is funded by JISC under their Managing Research Data (JISCMRD) Programme. ‘Datum for Health’ is one of 5 projects under the Research data management training materials strand of the Programme.

DATUM for Health aims to:
  • design and pilot a training programme on research data management for postgraduate research students in health studies as an integral part of a doctoral training programme;
  • evaluate the usefulness and effectiveness of the training with participants and other research stakeholders;
  • provide other Higher Education Institutions with a model for research data management skills training;
  • make recommendations for sustainable research data management training and associated infrastructure requirements.
The Project Lead is Professor Julie McLeod, School of Computing, Engineering & Information Sciences (CEIS) at Northumbria University. Other Project Team Members at the University are:
Professor Charlotte Clarke from the School of Health, Community and Education Studies;
Professor John Dean, from The Graduate School, and Sue Childs and Elizabeth Lomas from CEIS. The external Team members are Kevin Ashley, Director of the Digital Curation Centre and William Kilbride, Executive Director of the Digital Preservation Coalition.

A Project website has been set up at http://www.northumbria.ac.uk/datum

As outputs are produced they will be made freely here under a Creative Commons License. The Project News page has an RSS feed if you want to track our activities.

For further information contact me or use our Project email eb.datum at northumbria.ac.uk

Julie McLeod (Prof.)
Programme Leader MSc Records Management (Distance Learning)
School of Computing, Engineering & Information Sciences
Northumbria University
Room 2.45 Pandon Building Camden Street
Newcastle upon Tyne NE2 1XE
Julie.mcleod at northumbria.ac.uk
http://www.acerm.blogspot.com/
Twitter: Northumbria_RM

My source:
RECORDS-MANAGEMENT-UK at JISCMAIL.AC.UK

Related post:
http://hodges-model.blogspot.com/2010/09/keeping-research-data-safe-krds-project.html 

Tuesday, July 20, 2010

The art and science of Serresian spin

To Michel Serres:
- the middle is a point of reflection, a point at which questions - the question - must be asked. In fulfilling the purposes of the health career model:
  • bridging the theory - practice gap;
  • facilitating holistic practice;
  • supporting (personal and group) reflection;
  • enabling curriculum development;
- the model's four domains are constantly (re-)visited in turn. Motion is constant. Conception - birth provides that initial impetus. Health status. Life - momentum. Centered on the person the movement is usually self-correcting, seeking balance. Health care. Questions and answers whether whole or in part follow, leaving a trail of care delivered and care planned. A record.

There is definite synergy between our use of the health career model, the dynamic quality and quantity of health and social care and Serres' description of the spinning top:
"The behaviour of the cone or the top is worth analysing. Throw this toy and describe, as Plato did, what happens. It is in movement, this is certain, yet it is stable. It even rests on its point or its pole, the more so as its movement is rapid. All children know this. But its rest is still more paradoxical. The top may move about, by translation, without ever losing its stability. To repeat, it can do so as long as it turns very quickly.


Even better, its axis may lean, take on an inclination, without putting the movement of the whole in too much danger. It may again rock, by nutation, oscillating around a mean location. This very ancient and quite childish machine is marvellously instructive.

First of all, it combines and the movements known and thinkable at the time: rotation, translation, fall, leaning and swaying. An integral model, additive, overcharged, yet simple. Second, and above all, it conjoins in a simple one-off experiment phenomena judged or presumed to be contradictory. It is in movement and rest, it turns and yet does not move, it rocks and is stable. The simplicity of a complexity, first and foremost, an additive machine; a synthesis of contradictions, beyond anything else. Now it may serve as a little model of the world, for a naive simple and local orrery. It quivers, at rest, it moves forward, turning, like the heavens, like the stars." p.28-29.

Michel Serres, (2000) The Birth of Physics, Return of the Model, Turba, turbo. Clinamen Press.


Image source: http://industry.bnet.com/technology/10002785/spinvox-or-someone-like-it-keeps-spinning/

Saturday, July 3, 2010

CfP IEEE IC Special Issue: Web Technology and Architecture for Personal Health Records (July/August 2011)


IEEE Internet Computing: special issue planned for 2011

Guest Editors:
Chimezie Thomas-Ogbuji [cut at case.edu], Karthik Gomadam [karthik at knoesis.org], and Charles Petrie [petrie at stanford.edu]

Final submissions due 1 November 2010
Please email the guest editors a brief description of the article you plan to submit by 15 October 2010.


The healthcare industry is well positioned to take advantage of contemporary Web-based architecture to address the technological challenges of personal health record (PHR) systems, many of which require simultaneous advances in engineering, informatics, and network-based applications. Of particular interest are the PHR systems that capture healthcare data entered by individuals.

This special issue seeks original articles describing development, relevant trends, and challenges in incorporating contemporary Web-based technology for the primary functions of PHR systems. The main functional categories of interest are information collection, sharing, exchange, and management.

Appropriate topics of interest include:
  • Web-based, structured data collection in PHR systems;
  • implementations of access-control policies and healthcare data sharing;
  • distributed, identity-based authentication methods;
  • digital signature and encryption techniques;
  • Web portal architecture’s general components and capabilities as the basis for a PHR system;
  • architectural paradigms regarding connectivity to other healthcare information producers and consumers;
  • data models for PHR systems;
  • distributed data subscription and publishing protocols;
  • successful Web-based applications for chronic disease and medication management;
  • health applications for PHR systems on mobile devices;
  • privacy and security issues;
  • HIPAA and its implications for adopting cloud computing for PHR applications; and
  • semantics for PHR interoperability and applications
http://www.computer.org/internet/cfp.htm

All submissions must be original manuscripts of fewer than 5,000 words, focused on Internet technologies and implementations. All manuscripts are subject to peer review on both technical merit and relevance to IC’s international readership — primarily system and software design engineers. We do not accept white papers, and we discourage strictly theoretical or mathematical papers.

To submit a manuscript, please log on to Manuscript Central (https://mc.manuscriptcentral.com/cs-ieee) to create or access an account, which you can use to log on to IC‘s Author Center and upload your submission.

Saturday, May 1, 2010

Health, social care and informational emaciation

We hear a lot about information and how important it is, being in what is described as the information age, the information economy. ...

Nurses, patients and carers (plus managers) would instantly recognise that if a care plan and subsequent care delivery was based on the following assessment:

oriented, not depressedhypertension, falls, dizziness, headaches, pyrexia
carer due hip operationadmitted 1st May 2010 1200hrs
to clinical decisions unit

- we would be acutely concerned.

Clinically this is a case of informational emaciation. The information above is rather thin on the ground, this in turn affects the knowledge that can be gleaned in formulating, negotiating and agreeing actions. Even in the information sparse example above each of the care domains has some content; is that always the case?

Use of the word emaciated in this context is not intended to diminish the plight of people who are physically emaciated, poorly nourished.

This post is intended to highlight another aspect of poverty.

As the Global Healthcare Information Network (HIFA 2015) argues and campaigns - information is a means to emancipation - a way to overcome information emaciation.

Additional links:

Picker Institute Europe

Patient Information Forum

Patient Information Advisory Group

Wednesday, July 22, 2009

Workshop - Delivering High Quality Health Care for All: Bringing the social and technical together...

My SOURCE: SOCIOTECH at JISCMAIL.AC.UK

Dear Colleague,

Please find details attached of a Think Tank focused on developing socio-technical approaches to the provision of healthcare (in the context of the National Programme for IT in the NHS).
Please note that attendance is restricted to around 30 people and that anyone wishing to contribute will need to apply (as specified in the attachment) - which follows below PJ.

Thanks and best wishes

Chris
P.S. please feel free to circulate these details to colleagues who you think may be interested. Thank you.

Professor Chris W Clegg
Centre for Socio-Technical Systems Design
Leeds University Business School
University of Leeds
Leeds
LS2 9JT
c.w.clegg at leeds.ac.uk

Delivering High Quality Health Care for All:
Bringing the social and technical together for a joined-up approach to deliver supporting systems and technologies
10th/11th December 2009

Call for contributions to an event organised by the UK Faculty of Health Informatics and the BCS Socio-Technical Group

Core idea
This 2-day Think-Tank event has been set up to discuss and report on how Health and Social Care employers and other key stakeholders in the Informatics field might bring about a joined-up approach to the implementation of electronic health records, one that brings together changes both in technology and in the social practices around it.

Rationale
The National Audit Office’s report on “Delivering successful IT-enabled business change” see: www.nao.org.uk/publications/nao_reports/06-07/060733es.pdf and the University College London Evaluation report on the Early Adopters of the Summary Care Records project (see: http://www.ucl.ac.uk/openlearning/documents/scrie2008.pdf) both highlight the challenges of implementing technology-based projects within a fixed time line and how this can reduce the opportunities to get a more “user-centred” approach to change.

In many sectors of the UK economy the drive to get the technology ‘on desk, on time, and on budget’ can mitigate against developing a full understanding and consideration of how the changes may be of real practical value to users and customers.

It is increasingly recognised that ‘technology-push’ will not be enough in its own right to achieve the full benefits and efficiencies that are being sought in service delivery. Rather, we need to bring about innovations both in the technical systems, and in the working practices, work roles and processes that surround them. Put bluntly we need a more joined-up approach to change. This has been variously called ‘user-centred’ or ‘socio-technical’ or ‘holistic’.

Objectives
The objectives of this event are to discuss and subsequently report on –
• What does such a joined-up approach mean in practice?
• What examples exist from across the UK Health and Social care sector where such approaches have been used?
• Who has to do what, to make it happen consistently across the NHS and Social Care services?
• How will we know if it is succeeding?

Organisers
The event has been organised by the UK Faculty of Health Informatics and the BCS Socio-Technical Group.

The event will be chaired jointly by Professor Chris Clegg, Chair of the British Computer Society’s Socio-Technical Group the and Doctor Beverley Ellis, Joint Vice-Chair of the UK Faculty of Health Informatics.

Getting involved as a contributor or delegate at the event
If you wish to attend the Think Tank, please submit an Expression of Interest (EOI) to Bruce Elliott, Co-ordinator of the UK Faculty of Health Informatics at bruceelliott@nhs.net by 28th September 2009.

Your EOI should include brief summary (of up to 200 words) of your role, experience and expertise in this context.

Please note we are seeking people from a range of stakeholder groups including:

• Acute Hospitals
• Suppliers
• Health and Care Commissioning organisations
• Primary and Community Care Providers
• End users of nationally-led systems, e.g., CMS, SCR, ECR
• Connecting for Health, Informing Healthcare and the Scottish Government’s E-Health Programme
• Academics
• Patient Leads

In the event that we are over-subscribed, we will select people so as to provide an appropriate balance of experience and expertise, to ensure the Think Tank can meet its objectives.

Please make it clear in your EOI if you would also like to present a short paper at the event. In such a case please also add a brief abstract of your proposed paper (of up to 200 words).

If you have been allocated a place you will receive written confirmation along with a copy of the final programme by 16th October 2009.

Associated papers
In November 2009, a Position paper capturing some of the Key Challenges in adopting Socio-Technical approaches will be shared with the participants to identify some of the key issues that will be addressed at the event.

Following the event, up to 5 contributors to the event will be commissioned to write papers on the topics and issues emerging, with the aim of informing key stakeholders in how Socio-Technical approaches can be utilised effectively across the NHS and Social Care. These papers will be completed by the end of January 2010, for inclusion in an overall Briefing report. We will also be actively exploring avenues for wider publication in order that the good ideas can be spread and acted on.

Location
Weetwood Hotel and Conference Centre, Leeds

Thursday, March 12, 2009

Pre-Publication Discount: Nursing and Clinical Informatics - Socio-Technical Approaches

Take Advantage of the Pre-Publication Discount by Ordering this Book Today!


Nursing and Clinical Informatics: Socio-Technical Approaches

Edited By: Bettina Staudinger, University for Health Sciences, Medical Informatics and Technology, Austria; Victoria Höß, University for Health Sciences, Medical Informatics and Technology, Austria; Herwig Ostermann, University for Health Sciences, Medical Informatics and Technology, Austria


Description:
The field of nursing informatics is one of the fastest growing areas of medical informatics. As the industry grows, so does the need for obtaining the most recent, up-to-date research in this significant field of study.

Nursing and Clinical Informatics: Socio-Technical Approaches gives a general overview of the current state of nursing informatics paying particular attention to its social, socio-technical, and political aspects to further research and development projects. A unique international comparative work, this book covers the core areas of nursing informatics with a technical and functional respect and portrays them in their proper context.

Table of Contents:
Chapter I: A Treatise on Rural Public Health Nursing
    Wanda Sneed, Tarleton State University, USA

    The objective of this chapter is to promote public health nursing and community health nursing’s role in the new care delivery patterns, with predictive and preventative care models for populations. This entry will broaden the range of information available for informaticists, as their role expands in the new healthcare arena. Articulation with nursing informatics and the “quality chasm” crossings in U. S. healthcare will assist the informaticists with search and retrieval activities. All players in the healthcare arena will continue to be involved, but probably with a more rational policy-making role.

Chapter II: Assessment in a Computer-Based Nursing Documentation

    Elfriede Fitz, University for Health Sciences, Austria
    Daniela Deufert, University for Health Sciences, Austria
    Johannes, Hilbe, University for Health Sciences, Austria
    Christa Them, University for Health Sciences, Austria

    Experience in nursing practice shows that there are still problems with assessment in computer-based nursing documentation. In addition to nursing documentation, an assessment instrument that captures the needs for care must also be integrated. This chapter describes different Nursing Assessment Instruments and the advantages of Computer-Based Nursing Process Documentation by using quality criteria for assessment instruments such as validity, sensitivity, specificity, reliability, practicability, and the appropriateness of the instrument. Quality criteria for computer-based systems are basically software ergonomic aspects and therefore not part of this study. Each country should choose for itself those specific assessment instruments that capture the needs for care of their clients. The data presented make it possible that facilities are compared (also in regard of reliable cost estimates).

Chapter III: Clinical Decision Support Systems in Nursing

    Dawn Dowding, University of York, UK
    Rebecca Randell, City University, UK
    Natasha Mitchell, University of York, UK
    Rebecca Foster, School of Health Sciences at the University of Southampton, UK
    Valerie Lattimer, School of Health Sciences at the University of Southampton, UK
    Carl Thompson, University of York, UK

    Increasingly, new and extended roles and responsibilities for nurses are being supported through the introduction of clinical decision support systems (CDSS). This chapter provides an overview of research on nurses’ use of CDSS, considers the impact of CDSS on nurse decision making and patient outcomes, and explores the socio-technical factors that impact the use of CDSS. The chapter presents the results of a multi-site case study that explored how CDSS are used by nurses in practice in a range of contexts. The study reveals that how a system is used and may vary considerably from the original intentions of the system designer.

Chapter IV: Culturally Sensitive Healthcare for Newcomer Immigrants

    Jerono Rotich, North Carolina Agricultural & Technical State University, USA

    This chapter will give an overview of the healthcare-related challenges that most newcomer immigrants and refugees encounter as they acculturate into their new environments in Western countries. It will highlight practical tips that can: a) enhance the caregiver and patient relationships across cultures and across continents; b) enhance culturally sensitive healthcare services; and c) help to create culturally inviting healthcare environments. It is also evident that, although these newcomers enrich their new nations with their diverse backgrounds, language, and cultural differences, each continues to pose formidable obstacles to their health, healthcare providers, and the health system in general. While the patients and providers realize the effects of immigration on the quality and access to healthcare, they seem to be overwhelmed by the barriers.

Chapter V: Mobile Technology in a Developing Context: Impacts and Directions for Nursing

    Pammla Petrucka, University of Saskatchewan, Canada
    Sandra Bassendowski, University of Saskatchewan, Canada
    Thomas F. James, Apogia Networks, Ltd. , Canada
    Hazel Roberts, Government of St. Kitts-Nevis, Ministry of Health, Canada
    June Anonson, University of Saskatchewan, Canada

    This chapter presents the imperatives of mobile technologies in the healthcare. It presents the contextual overview in development of the diffusion, penetration, and uptake of health-related mobile technologies. A consideration of the roles and responsibilities of the diaspora in the embracing of information and communication technologies is emphasized. Key examples of mobile technologies in development to increase understanding and demonstrate promising practices in this emergent field are given.

Chapter VI: Nursing Documentation in a Mature EHR System

    Kenric W. Hammond, VA Puget Sound Health Care System, USA
    Charlene R. Weir, University of Utah, USA
    Efthimis Efthimiadis, University of Washington Information School, USA

    Computerized patient care documentation (CPD) is a vital part of a Patient Care Information System (PCIS). Studying CPD in a well-established PCIS is useful because problems of system adoption and start-up do not interfere with observations. Factors interfering with optimal nursing use of CPD are particularly challenging and of great concern, given today’s shortage of nursing manpower. The chapter describes problems and advantages of CPD usage identified by nurses in a series of research interviews. It is shown that explicit consideration of nursing workflow constraints and communication processes is necessary for development of effective nursing documentation systems. Some findings point to a PCIS reconfiguration strategy that is feasible in the short term. Other findings suggest the value of considering mobile and team-oriented technologies in future versions of the PCIS.

Chapter VII: Nurses and Telehealth: Current Practice and Future Trends

    Sisira Edirippulige, University of Queensland, Australia
    Anthony C. Smith, University of Queensland, Australia
    Mark Bensink, University of Queensland, Australia
    Nigel Armfield, University of Queensland, Australia
    Richard Wootton, University of Queensland, Australia

    Home telehealth, the use of information and communication technologies to deliver and support healthcare directly to the home, is emerging as an important application for nurses. This chapter provides an overview of home telehealth and how it may be applied to the practical challenges nurses face everyday. We provide a summary of the evidence available to support its use in specific areas and a guide for those thinking of implementing telehealth in their own practice. The future of home telehealth lies in carefully considered and designed research, ongoing education, and training and a multidisciplinary approach.

Chapter VIII: Successful Online Teaching and Learning Strategies

    Mary D. Oriol, Loyola University New Orleans, USA
    Gail Tumulty, Loyola University New Orleans, USA

    This chapter presents a theoretical framework and research base for the successful transition of an established Master of Science in Nursing program from that of traditional classroom delivery to one that is Web-based with no geographic limitations to students. The application of socio-technical systems theory to facilitate creation of a positive learning environment for future nurse leaders is described. Use of social processes and application of technology to optimize learning is explained and the latest research on content presentation and student engagement in an e-learning environment are presented. The chapter gives an understanding of the competencies necessary for students and faculty to be successful in online education.

Chapter IX: Shaping Funding Policy for Nursing Services

    Virginia Plummer, Monash University, Australia

    Concerning nursing resource allocation health service executives have different views about whether systems based on ratios or those based on patient dependency are more accurate. This chapter reports on a statistical analysis of almost 2 million hours of nursing data provided by 22 acute care public and private hospitals in Australia, New Zealand and Thailand. To evaluate both ways an informatics system was used which has the capacity to simultaneously measure nurse patient ratios and nursing workloads by a dependency method of nursing hours per patient day. The results showed that it predicts actual direct nursing care requirements with greater accuracy than ratios for all hospital and patient types, facilitating better allocation of nursing resources and demonstrating that the cost of nursing care would be less for hospitals using that system than for ratios.

Chapter X: Simulations to Assess Medication Administration Systems

    Elizabeth M. Borycki, University of Victoria, Canada
    Andre W. Kushniruk, University of Victoria, Canada
    Shigeki Kuwata, Tottori University Hospital, Japan
    Hiromi Watanabe, Tottori University Hospital, Japan

    A range of new technologies/information systems are being implemented in clinical settings in order to reduce errors associated with the medication administration process. Simulation methods can be used to assess the impact of integrating new technology/information systems into the nurses’ work environment prior to full-scale implementation of a health technology/information system. Simulations as an evaluative tool emerged from a direct need to assess unintended and intended consequences of health information systems upon nurses’ work before systems are fully implemented. Nurse information use of simulations to assess and test health technologies/information systems will allow nurses to determine the impact of a new software and/or hardware upon aspects of nurses’ work before its implementation to allow for appropriate system modifications.

Chapter XI: Socio-Technical Structures, 4Ps and Hodges' model

    Peter Jones, NHS Community Mental Health Nursing Older Adults, UK

    This chapter explores the potential of a conceptual framework – Hodges’ model – both as a socio-technical structure and means to explore such structures of relevance to nursing informatics theory and practice. The model can be applied universally by virtue of its structure and the content which it can encompass. In apprehending this chapter, readers will be able to draw, describe, and explain the scope of Hodges’ model within contemporary healthcare contexts and the wider global issues presented by the 21st century that influence and shape nursing informatics. Critically, the reader will also gain insight into how socio-technical structures can facilitate cross fertilization of clinical and informatics theory and practice; drawing attention to information as a concept that provides a bridge between socio-technical, clinical, and informatics disciplines. The paper will review the socio-technical literature and venture definitions of socio-technical structures related to Hodges’ model and advocate the need for sociopolitical-technical structures. This chapter also proposes the 4Ps as a tool to facilitate reflection upon and the construction of socio-technical structures. The adoption and significance of the hyphenated form as per “socio-technical” will also be explained.

Chapter XII: Strategies for Creating Virtual Learning Communities

    Beth Perry Mahler, Athabasca University, Canada
    Margaret Edwards, Athabasca University, Canada

    Teaching nursing online requires teachers to purposefully use strategies that facilitate the development of virtual learning communities. This chapter proposes answers to the question, “How can educators effectively teach the very social discipline of nursing in virtual classrooms?” Specific online teaching strategies including Photovoice, Virtual Reflective Centers, and Conceptual Quilting are explored. The social and socio-technical implications of teaching nursing online are considered. A final section in the chapter describes how these developments in online nursing education are changing the social and pedagogical perspectives of distance learning. Research questions that arise from this exploration are presented.

Chapter XIII: The Impact of Technology in Organizational Communication

    Roberta Cuel, University of Trento, Italy
    Roberta Ferrario, Laboratory for Applied Ontology (ISTC-CNR), Italy

    In this chapter a case study is presented, in which the ethnomethodological approach is used to analyze the impact of the implementation of an information system, called Sispes, on organizational communication processes in the residence for elderly Giovanelli (Italy). Sispes is a Web-based platform which sustains communication processes and knowledge management according to a customized workflow management system. Adopting structuration theories in the analysis of the case study, and taking inspiration from the philosophical tradition, especially in epistemology and in the analytic philosophy of law, an innovative perspective is adopted, which specifically acknowledges the role played by the communication processes in shaping both the attitudes of the involved actors and the social reality in which they are immersed. According to this perspective, three types of communication processes are presented, namely the normative, descriptive and constructive approach. These latter are then applied to a concrete case study.

Chapter XIV: The Roles of a Nurse in Telemedical Consultations

    Boris A. Kobrinsky, Moscow Research Institute for Paediatrics and Children’s Surgery, Russia
    Nikolay V. Matveev, Moscow Research Institute for Paediatrics and Children’s Surgery, Russia

    Telemedicine, or distant medical consultations using communication via electronic networks, is gradually becoming a standard of medical care delivery in distant areas worldwide, including both the most developed and the developing countries. For instance, in 2007 telemedical centres existed in 55% of the Russian regions (on average, about 4 centres in each region). In most of the cases, nurses are actively involved into organization of various types of distant consultation. Main types of telemedical services include: (1) emergency consultations of patients by telephone (2) telemedical consultations using videoconferences or store-and-forward systems and (3) home telecare systems. Possible roles of nurses in different types of telemedical consultations are discussed.

Chapter XV: The Role of EBM and Nursing Informatics in Rural Australia

    Daniel Carbone, University of Melbourne, Australia

    The purpose of this chapter is to discuss broadly the need for enhanced evidence-based medicine (EBM) by nurses in the context of rural Australia and the role that nursing informatics and an informed strategy could facilitate in making such need a feasible reality. First, the introduction highlights current time gaps between health discoveries and eventual practice and the potential for information technology to positively affect this gap. Then, the need for nurses to take an active role in evidence-based medicine in rural settings is argued. The link between information literacy and evidence medicine is consequently presented and gaps in knowledge regarding nursing informatics training are highlighted. Concluding with the argument that to achieve evidence-based research and eventual use, there needs to be a purposeful health informatics learning strategy that recognises the role of computer and information literacy.

Chapter XVI: Use of Handheld Computers in Nursing Education

    Maureen Farrell, University of Ballarat, and RMIT University, Australia

    The use of mobile technologies in nursing education is rapidly increasing. Handheld computers are the most frequently used of these technologies as they can provide students with information for point of care clinical reference, such as diagnostics, medical terminology, and drug references. Integrating the management and processing of information into clinical practice is an effective learning approach for students and reflects a changing paradigm in nursing education. Traditionally, nursing programs have the tendency to separate the acquisition of academic knowledge from clinical practice, and the process of integrating academic information into the decision-making processes in the clinical area has been difficult for student nurses. This chapter will provide an overview of the use of handheld computers in nursing and medical education, including a brief synopsis of current use in clinical practice. It will discuss the advantages and disadvantages of their use, barriers to implementation and future directions.

Chapter XVII: Using Information Technology in Nursing Education

    Elizabeth Rogerson,University of Dundee, UK
    Linda Martindale, University of Maryland School of Nursing, USA
    Carolyn Waltz, University of Maryland School of Nursing, USA

    This chapter addresses issues relating to nursing informatics as used and applied in nursing education. This includes the use of information technology (IT) in delivering nursing education, as well as the teaching of IT and informatics skills to prepare nurses for practice. Drivers associated with the development and use of IT in nursing education are discussed, as well as current use of IT in nursing education and practice, including both mainstream and emerging technologies. Lastly some key issues for the future are identified. Internationalism is regarded as a consistent theme in IT development and occurs as a recurring thread throughout this chapter.

Wednesday, February 18, 2009

The 'Health Career' - records and symmetry breaking: Admin vs Clinical needs?

In my nursing career to date and over the past 18 months I've been involved in some complex clinical cases involving quite profound physical, mental and social aspects of care.

Such complexity given the rise of long-term chronic medical conditions, multiple diagnoses and an ageing population is not uncommon. What is more remarkable is simultaneously reading on the records management and other informatics mail lists questions regarding the retention of specific types records within health care, social care, schools and the human resource departments of other organisational settings.

From the perspective of Hodges' model and the notion of a health career you wonder about the efficiency of administration - and legislation - versus the potential future utility of 'archived' clinical records. Clinical records from 20 years ago and less have frequently been destroyed and you are left to consider the possible relevance of that information to the care delivered in the here and now? This is particularly acute for reasons of the following:
  • the increase in dementia and an individual's capacity to account for their past care;
  • the increase in fractured family histories;
  • the likelihood of significant past care episodes and medical events relevant to future episodes: 1) cancers; 2) psychological problems; 3) negative life experiences;
  • the use of the medical record (health career) to inform someone's life story (and not just as a 'therapeutic intervention').
Is there an argument for a re-appraisal of retention schedules? Factors to consider might include:
  • the shift to digital collection, storage, archiving and ever improving retrieval technologies;
  • the use of semantic search - and intelligent (context - discipline-based) applications;
  • the ability of the individual to decide on the longevity of their records;
  • the advice of specific patient groups - Alzheimer's; Multiple Sclerosis; HIV / Aids...;
  • the transition of an individual record to an item of historical interest;
  • the ongoing emphasis upon collaborative care, self-care and personal health records;
  • Archiving - shift from paper-centric to inclusion of digital media?
What do you think?

Additional links:

DoH Records Management - Information Policy

DoH (2006) Records management: NHS code of practice

CIPD: Retention of personnel and other related records

Personal Health Record

MyPHR

Hodges' model: POLITICAL domain links

Saturday, January 31, 2009

(Confidential) Letter to self - and you, and you, and you... ?

Hi PJ,

I'm wondering if you can help with something that's been troubling me a bit...?

You know that as a nurse (and future patient!) confidentiality (which increasingly relies on the security of ICT systems) is of course vital to your profession and professionalism both in theory and practice. Quite rightly take this for granted and you could be in serious trouble, with your job in jeopardy.

I’ve been wondering about the way that Jo-public views their personal health information and clinical record and how these views have evolved over the past decade and how they will change in the next 5, 10 .... years? A change that will have major implications for definitions and the meanings of record, access, sharing, personalised, and professional. This is also one of those slippery slopes; since it will be very difficult to get that emerging genie back in the bottle. The clinical record even with new consent models will increasingly make it a currency for exchange within a *wider* community given the rise of electronic and personal health records, Health 2.0, 3.0…. By 'community' I mean one not just restricted to health and social care organizations, but one that could be much more extensive.

There are a lot of tools out there in the public domain that enable the creation of new portals, services to which other agencies can add value. This is not a problem: 'value-added services' is one definition of progress.

The problem is the pace of change and the extent.


Health has always been commodified. Recently on the news I heard that a kidney is probably worth 1.5 million dollars.

Perhaps for the ‘professions’ given the sanctity of clinical records this is the
ultimate trip?

Any thoughts or directions to references…?

Many thanks and best regards,

'Your other half'
P.S. People had better be careful when they mix personalised and professional - that's quite a potent concoction. I wonder if you can sell it?

<->

Additional links / reading:

Nursing & Midwifery Council - Standards

Viewpoint Paper

A Research Agenda for Personal Health Records (PHRs)
David C. Kaelber, Ashish K. Jha, Douglas Johnston, Blackford Middleton and David W. Bates
Journal of the American Medical Informatics Association, Volume 15, Issue 6, November-December 2008, Pages 729-736.

Abstract:

Patients, policymakers, providers, payers, employers, and others have increasing interest in using personal health records (PHRs) to improve healthcare costs, quality, and efficiency. While organizations now invest millions of dollars in PHRs, the best PHR architectures, value propositions, and descriptions are not universally agreed upon. Despite widespread interest and activity, little PHR research has been done to date, and targeted research investment in PHRs appears inadequate. The authors reviewed the existing PHR specific literature (100 articles) and divided the articles into seven categories, of which four in particular— evaluation of PHR functions, adoption and attitudes of healthcare providers and patients towards PHRs, PHR related privacy and security, and PHR architecture—present important research opportunities. We also briefly discuss other research related to PHRs, PHR research funding sources, and PHR business models. We believe that additional PHR research can increase the likelihood that future PHR system deployments will beneficially impact healthcare costs, quality, and efficiency.


From the above:

Markle Foundation http://www.markle.org

Robert Wood Johnson Foundation http://www.rwjf.org


Considering something ‘ELSE’: Ethical, legal and socio-economic factors in medical imaging and medical informatics
Penny Duquenoy, Carlisle George, Anthony Solomonides
Computer Methods and Programs in Biomedicine, Volume 92, Issue 3, December 2008, Pages 227-237.

Abstract:
The focus on the use of existing and new technologies to facilitate advances in medical imaging and medical informatics (MIMI) is often directed to the technical capabilities and possibilities that these technologies bring. The technologies, though, in acting as a mediating agent alter the dynamics and context of information delivery in subtle ways. While these changes bring benefits in more efficient information transfer and offer the potential of better healthcare, they also disrupt traditional processes and practices which have been formulated for a different setting. The governance processes that underpin core ethical principles, such as patient confidentiality and informed consent, may no longer be appropriate in a new technological context. Therefore, in addition to discussing new methodologies, techniques and applications, there is need for a discussion of ethical, legal and socio-economic (ELSE) issues surrounding the use and application of technologies in MIMI. Consideration of these issues is especially important for the area of medical informatics which after all exists to support patients, healthcare practitioners and inform science. This paper brings to light some important ethical, legal and socio-economic issues related to MIMI with the aim of furthering an interdisciplinary approach to the increasing use of Information and Communication Technologies (ICT) in healthcare.

Situation-Based Access Control: Privacy management via modeling of patient data access scenarios
Mor Peleg, Dizza Beimel, Dov Dori, Yaron Denekamp
Journal of Biomedical Informatics, Volume 41, Issue 6, December 2008, Pages 1028-1040.

Abstract:
Access control is a central problem in privacy management. A common practice in controlling access to sensitive data, such as electronic health records (EHRs), is Role-Based Access Control (RBAC). RBAC is limited as it does not account for the circumstances under which access to sensitive data is requested. Following a qualitative study that elicited access scenarios, we used Object-Process Methodology to structure the scenarios and conceive a Situation-Based Access Control (SitBAC) model. SitBAC is a conceptual model, which defines scenarios where patient’s data access is permitted or denied. The main concept underlying this model is the Situation Schema, which is a pattern consisting of the entities Data-Requestor, Patient, EHR, Access Task, Legal-Authorization, and Response, along with their properties and relations. The various data access scenarios are expressed via Situation Instances. While we focus on the medical domain, the model is generic and can be adapted to other domains.


Patient Information Advisory Group - PIAG: http://www.advisorybodies.doh.gov.uk/piag/

Picker Inst. http://www.pickereurope.org/

Tuesday, September 16, 2008

Mental health survivors create evolving timeline of the UK survivor/user movement

From: Jill Anderson
To: MHHE AT JISCMAIL.AC.UK
Sent: Monday, 15 September, 2008 17:08:22
Subject: Survivor/User movement timeline

The survivors history group has created an evolving timeline of the UK survivor/user movement. It can be viewed online at:

http://studymore.org.uk/mpu.htm#Manchester2008

Will be an invaluable resource for teaching.

Best wishes,
Jill
----

Here is one entry of particular note for 1894:

A short story Passed is the first known published work of Charlotte Mew. The writer, walking in a poor area of London (Clerkenwell?), visits a church. She sees a gospel that the priest at the alter does not:

"Two girls holding each other's hands came in and stood in deep shadow behind the farthest rows of high-backed chairs by the door. The younger rolled her head from side to side; her shifting eyes and ceaseless imbecile grimaces chilled my blood. The other, who stood praying, turned suddenly (the place but for the flaring alter lights was dark) and kissed the dreadful creature by her side. I shuddered, and yet her face wore no look of loathing nor pity. The expression was a divine one of habitual love. She wiped the idiot's lips and stroked the shaking hands in hers, to quiet the sad hysterical caresses she would not check. It was a page of gospel which the old man with his back to it might never read. A sublime and ghastly scene."

The description may shock (See also 1916), but compare with Jayne Eyre in 1847 and the Care of Children Committee in 1946. The outstanding difference is the compassion.

The partner web resource of the survivors history timeline the - Mental Health History Timeline - is also well worth exploring.

Wednesday, September 3, 2008

Holistic care: What is 'holistic bandwidth'?

The old website with its pages is static. In thinking about how to mix the old and create new dynamic content for a Drupal based site, I came across a possible way to define and explore our notions of holistic care. Here are some very initial musings....

First to focus on quantity. In completing an assessment whichever care domain I start in (let's say the intrapersonal domain) then as that domain is populated can it be argued that within the other domains the same number of placeholders for our assessment data are created? If my patient has eight problems (and two strengths) then according to one definition of holistic bandwidth the remaining domains should have the same number of problems (and strengths). Balance in all things - including holistic care?

One thing that the ADLs teach us is that (holistic) care as represented in Hodges' model is asymmetrical (see previous post).

This does not mean that the ideal of holistic care is lost.

It might mean that strident efforts to assure holistic bandwidth can interfere with our attaining person-centred, integrated and multidisciplinary care.

It is essential that we recognise holistic care as an ideal, as a constraint and the primacy of functional considerations in:
  • assessment;
  • planning;
  • care interventions;
  • evaluation;
  • and governance.
It comes as no surprise then that there are several versions of holistic bandwidth:
  1. If we want to be inclusive then version #1 is epistemological. This anticipates the total number of semantically associated concepts that can potentially arise in a given care episode. This is what might be termed the 'semantic web of care'.
  2. The sum total of concepts across all the care domains (inc. spiritual) that are actually activated in the course of a care episode.
  3. The concepts that are deemed relevant by the patient, carer, family and guardians.... These add holistic value to and may well (must!) overlap with the care concepts recorded by the clinical team and reflected in the health record(s).
  4. The degree of expressiveness of the care recording system - its capacity to represent holistic care and capture (measure) holistic bandwidth pre- or post- care episode completion.
  5. The (idealised and learner generated) collections of care concepts identified and enacted within education.
  6. The idealised and actual collections of holistic arrays applied and recorded by the combined clinical and social care disciplines* involved (there are two sets in practise and theory). As per #3 these (should) overlap with the patient and carer's....
  7. The final combined lexis of written, electronic and other record(ed) media that constitutes the final:
    • personal health record;
    • summary health record;
    • historical health record;
    • clinical record;
    • ....
    • all the above combined;
    • an individual and group's (family) health career!
  8. In addition there are the anonymised and aggregated data items that form part of clinical / management reports, local, central government statistics and returns that inform national health and social care policy and global health intelligence at the WHO.
  9. Throughout 1-8 holistic bandwidth must also incorporate education, engagement and informatics.
It is reasonable to speak of personal and impersonal forms of holistic bandwidth.

Students - if this is helpful or confusing please let me know h2cmuk @ yahoo.co.uk