The Public, Patients and Carers in Hodges' model

The table below indicates some of the main concepts and concerns that
surround the PUBLIC, PATIENTS and CARERS agenda presented using the four care domains of Hodges' model:

INTERPERSONAL : SCIENCES
SOCIOLOGY : POLITICAL

Well-being, mental (subjective) health, mood, hope, human spirit. Knowledge and understanding of condition. Literacies: 3Rs, ICT, social, visual, spiritual, health.... Diagnosis - prognosis. Psychological impact. Aware of info sources tolerance, personal choices & autonomy. Response to trauma, threat, loss. Belief systems. Coping strategies. Emotional memory Perception. 'Individual pain' Motivation. Responsibility Ability to work, disability, gender Individual engagement, personhood, dignity. Self-care, Purpose Personal Health Record Attitudes, beliefs

Physical (objective) health. Chronological - Pathological Age (of care subject, carers). 'Fitness'. Activity. Systems. SAFETY PROCESSES, structural flexibility. Pain thresholds. Measures (Pain genetics, scorecards). Systems, feedback, redesign, improvement. Complexity. Change. Research: Evidence-based care. NICE. Quantitative, Quality of Life, assessment, screening. Process redundancy. Decision making PEPIN: Professional Education Public Involvement UK Network Referral, care pathways, plans, time. Self-admin drugs. Expert patient. Health, care, eng. model(s) Ill-health - Health promotion Time for data collection. Curricula design, Courses, qualification. Standards vs Innovation Computer supported engagement*

Carer - family understanding of condition, diagnosis-prognosis. Genetic implications (if any). Familial genetics pain. Sense making. Meaning. Social articulation of individual +ve & -ve experiences. Generational (role) inversion. Engagement and Social inclusion: work, social mobility, homelessness, stigma, poverty. Access to info and comms technology The Engaged E-patient Population Medical Sociology. Sick-role. PRACTICE Effects of culture 'meanings'. Dependency. Religion, fatalism. Leisure. Volunteering. Social capital / capacity. Collaborative care, concordance. Socio-cultural reach. Communications. Media. Dialogue. Qualitiative research. Social change attitudes. Shared definitions and meanings: 'engagement', 'health', 'wellness'...

POLICY, Nat. - U.N., FUNDING, GLOBAL ECONOMICS. Legislation: Section 11 of the Health and Social Care Act 2001. Nat. programs: Health For All. Health & Local Social Service Auths, 3rd & Independent sectors. Choice, Equity, Equality, Access, Advocacy Services. Consultation, engagement. (PALs) LINks. Definitions: engagement continua, datasets, intelligence / reporting. Service planning and development. 'Localisation' - Center. NHS Constitution Scalability of concept: Grp - Ind. Organisational empathy ('x.org' <-> public, patient 'rapport, involvement'). Economic cost of prolonged 'patiency'. 'Patient Lead'. Compliance. Political priorities, strategy, continuity. Policy half-life. Consolidation. Governance. Expenses. Specificity of roles, social exclusion. Wellness. Disability. Human Rights. Invalidity. Re-training. Health outcomes, assessment. (Lay) Representation. Champions. Black, Minority, Ethinic groups. 'Citizen-Patient'? DoH INVOLVE1 Involve2 Retirees. NHS: 'Open All Hours' Dedicated centres: e.g., NCI3

The focus above is UK, but can be readily revised to reflect other countries.

1. INVOLVE: Promoting public involvement in NHS, public health and social care research.
2. Involve: Promoting public and patient involvement in policy making and service design.
3. NHS Centre for Involvement.

Additional links:

Patients' use of the Internet for health related matters: a study of Internet usage in 2000 and 2006
Healthy Democracy: The future of involvement in health and social care, Edward Andersson, Jonathan Tritter and Richard Wilson (Editors).
Dept. of Health, Patient and Public Involvement
Engage, Northern Ireland.
The Local Government and Public Involvement in Health Act 2007
LINks: individuals and community groups who work together to improve local services.
Our health, our care, our say: a new direction for community services.
Patient Information Advisory Group (PIAG).
National Patient Safety Agency

The SOCIOLOGICAL links page includes 'Seven Ages', 'Public, Patients, & Carers'...
The INTRAPERSONAL links page includes 'Mental Health', 'Psychology', 'Therapies'...
The POLITICAL links page includes 'Policy', 'Citizenry'...

*Several informatics schools: community, urban, social, health, nursing, gender, e-gov...

Radiant skin booster drink

Enjoy radiant skin an instant energy boost with invigorating fusion of strawberries and banana. Rich in vitamin C, calcium and healing phytochemicals, strawberries are great for healthy skin.

Revitalize yourself with this drink before your leave for work in the morning to give your skin a well - deserved radiance booster

Ingredients for radiance booster drink :

1 banana

1/2 cup of strawberries

1 tablespoon honey

1 cup plain yogurt

Put all ingredients into a blender. Blend until creamy texture is obtained and drink it immediately.

This drink will revive the dull looking and enjoy a healthy glow skin.

Periodic Table of Visualization Methods [Net-Gold]

Plenty here to think about...
(source ack. Terri Willingham & Net-Gold):

Date: Tue, 21 Oct 2008 14:50:54 -0000
Subject: [Net-Gold] E-LEARNING: Visual Literacy

Visual Literacy
http://www.visual-literacy.org/

See, especially, the Periodic Table of Visualization Methods:
http://www.visual- literacy. org/periodic_ table/periodic_ table.html

This e-learning site focuses on a critical, but often neglected skill for business, communication, and engineering students, namely visual literacy, or the ability to evaluate, apply, or create conceptual visual representations. After this tutorial, students should be able to evaluate advantages and disadvantages of visual representations, to improve their shortcomings, to use them to create and communicate knowledge, or to devise new ways of representing insights.

The didactic approach consists of rooting visualization in its application contexts, i.e. giving students the necessary critical attitude, principles, tools and feedback to develop their own high-quality visualization formats for specific problems (problem-based learning). The students thus learn about the commonalities of good visualization in diverse areas, but also explore the specificities of visualization in their field of specialization (through real-life case studies). They will not only learn by doing, but in doing so contribute new training material for their peers to evaluate (peer learning).

Terri Willingham

Learning is for Everyone

http://www.learningis4everyone. org

Two vacancies students - young professionals @ WHO Geneva

Marvellous opportunities. ...

Dear colleagues,

Please help us in disseminating two vacancy notices issued by the World Health Organization for opportunities for promising students and young professionals in our Geneva headquarters.

In particular, we are looking for persons with quantitative skills to work on global health workforce information, monitoring and research. We are currently looking to recruit one full-time professional (as per the vacancy notice HQ/08/HQ/HRH/FT861 - see link below).

We are also continuously open to offering (unpaid) internship opportunities.

Full details can be found at: http://www.who.int/employment/en/

Thanking you in advance,

Neeru Gupta

Demographer-Statistician, PhD
Department of Human Resources for Health
World Health Organization
Avenue Appia 20, Geneva 1211, Switzerland
Tel.: 41-22-791-1066 / Fax: 41-22-791-4747
Email: guptan at who.int

My source: ESDS Government mailing list

D-I-Y Remedy for Oily Skin

You can find the best ingredients from the kitchen. The best solution might be to turn to a natural remedy. How to do it ?

Ingredients : One ripe banana, one tablespoon of honey and a few drops of orange/lemon juice

Mix all in one bowl and apply it as a mask, a deep cleansing mask.

Put it on in abt 15 ~ 20 min. Later, simply rinse it off with cool water or gently wipe it off with a warm wash cloth.

The result, smooth, oil-free and soft skin like a baby. Try it a few times and you will see the different.

Introducing Visual (Research) Methods: Review Paper

ESRC National Centre for Research Methods Review Paper
Introducing Visual Methods (65 pages)
Jon Prosser, University of Leeds, UK
Andrew Loxley, Trinity College, University of Dublin, Eire
October 2008
National Centre for Research Methods
NCRM Review Papers

Abstract

Over the last two decades there has been a global surge in interest in visual research methods. Word and number-based researchers are coming to realise there is considerable potential for gaining knowledge if image-based methodologies are adopted. This paper provides and overview of approaches and perspectives broken down into five easily digested sections to be consumed wholly or in part: early visual research; researcher created data; respondent created data; research design; and visual ethics. The paper will be of particular interest to qualitative social scientists new to visual methods or those with little experience of their application. A wide range of carefully selected references and resources are included to provide the reader with further in-depth insights.

My source: IVSA Digest - 17 Oct 2008 to 18 Oct 2008 (#2008-153)

ERCIM News: special theme - "Safety-Critical Software"

ERCIM News no. 75 has just been published:

Special Theme: "Safety-Critical Software"
Featuring a keynote by Gérard Berry, Chief Scientist, Esterel Technologies; Member of the ERCIM Advisory Board; Member Académie des sciences, Académie des technologies, and Academia Europaea.

Next issue: January 2009 - Special Theme: "Sensor Web"
(Thank you for your interest in ERCIM News.
Feel free to forward this message to others who might be interested.)

Source: Peter Kunz; ercim.org

Additional links:
International Science Grid This Week
THE GOOD, THE BAD AND THE CHALLENGING: The user and the future of information and communication technologies. A transdisciplinary conference organised by COST Action 298 "Participation in the Broadband Society"